Instagram #internationalepilepsyday hashtag medias

Last Monday was #internationalepilepsyday On this day I started a new job, went to a lecture on new epilepsy research and reflected on my journey since being diagnosed. Epilepsy is hard to control and hard to live with. I have been on 4 different medications and my seizures are still not 100% controlled, they are worse if I am sick, stressed and sleep deprived to name a few triggers. My consultant is currently looking into the possibility of me having autoimmune epilepsy. What I am trying to say is it is a lot of trial and error but it’s worth it for some normality. I am lucky I can work, despite also having #chiarimalformation some are unable to with their seizure frequency. And I was blessed with with a beautiful healthy baby girl despite being on fairly new medication on the market. Educate yourself, there are many types of seizures, know what to do if you happen to witness one. And learn the different types of jewelry a person may wear to inform you of their epilepsy. Mine is a blue silicone band which can be activated by an android phone so you can access my information and emergency contacts. I once had someone tell me that my seizure ‘didn’t look like a seizure’ because ai didn’t collapse or foam at the mouth. There are many different types. So learn about them and if you can donate to services for epilepsy! Help make life a little easier for those with epilepsy. #epilepsy #internationalepilepsyday #latetotheparty #betterlatethannever #epilepsyawareness #chiarimalformation

Last Monday was #internationalepilepsyday  On this day I started a new job, went to a lecture on new epilepsy research and reflected on my journey since being diagnosed. Epilepsy is hard to control and hard to live with. I have been on 4 different medications and my seizures are still not 100% controlled, they are worse if I am sick, stressed and sleep deprived to name a few triggers. My consultant is currently looking into the possibility of me having autoimmune epilepsy. What I am trying to say is it is a lot of trial and error but it’s worth it for some normality. I am lucky I can work, despite also having #chiarimalformation  some are unable to with their seizure frequency. And I was blessed with with a beautiful healthy baby girl despite being on fairly new medication on the market. Educate yourself, there are many types of seizures, know what to do if you happen to witness one. And learn the different types of jewelry a person may wear to inform you of their epilepsy. Mine is a blue silicone band which can be activated by an android phone so you can access my information and emergency contacts. I once had someone tell me that my seizure ‘didn’t look like a seizure’ because ai didn’t collapse or foam at the mouth. There are many different types. So learn about them and if you can donate to services for epilepsy! Help make life a little easier for those with epilepsy. #epilepsy  #internationalepilepsyday  #latetotheparty  #betterlatethannever  #epilepsyawareness  #chiarimalformation 

این ویدیو در مسابقه روز جهانی صرع جزو برندگان بوده و متعلق به خانم  فرح عباسی مدیر روابط بین الملل انجمن صرع ایران است. 
امیدوارم پیام این ویدیو به خوبی درک بشه چون شرایط بچه های ما در خطره. من تا یک سال آینده داروی ایلیا و خریدم و هر لحظه منتظرم که این دارو دیگه توی مارکت نباشه. حس خوبی نیست اضطراب.

دوستان همراه لطفا در حد توان این ویدیو را به اشتراک بگذارید. با این کارتان کمک بزرگی به درمان صرع خو اهید داشت ممنونم.
 @iranepilepsy تبریک به خانم عباسی
این هم لینک یوتیوب:

https://youtu.be/EJREYIP8n1M?list=PLDtaVe7olIXwRVpMgNYzV0uvixQyEca-k

#iranepilepsyassociation #epilepsyday#endepilepsy #internationalepilepsyday #competition #warrior #stopthewar #peace #liveinthepeace #epilepsypositivity #epilepsyawareness #epilepsywarrior #purpledaymarch26th #purpleday 
#مبارزه_با_صرع #صرع #صرع_و_تشنج #صلح #امنیت #مسابقه_روز_جهانی_صرع #دارو #داروی _صرع

این ویدیو در مسابقه روز جهانی صرع جزو برندگان بوده و متعلق به خانم فرح عباسی مدیر روابط بین الملل انجمن صرع ایران است. امیدوارم پیام این ویدیو به خوبی درک بشه چون شرایط بچه های ما در خطره. من تا یک سال آینده داروی ایلیا و خریدم و هر لحظه منتظرم که این دارو دیگه توی مارکت نباشه. حس خوبی نیست اضطراب. دوستان همراه لطفا در حد توان این ویدیو را به اشتراک بگذارید. با این کارتان کمک بزرگی به درمان صرع خو اهید داشت ممنونم. @iranepilepsy تبریک به خانم عباسی این هم لینک یوتیوب: https://youtu.be/EJREYIP8n1M?list=PLDtaVe7olIXwRVpMgNYzV0uvixQyEca-k #iranepilepsyassociation  #epilepsyday #endepilepsy  #internationalepilepsyday  #competition  #warrior  #stopthewar  #peace  #liveinthepeace  #epilepsypositivity  #epilepsyawareness  #epilepsywarrior  #purpledaymarch26th  #purpleday  #مبارزه_با_صرع  #صرع  #صرع_و_تشنج  #صلح  #امنیت  #مسابقه_روز_جهانی_صرع  #دارو  #داروی  _صرع

The distance between us when we communicate... A major issue during my teens and twenties was simply communicating via spoken word. Due to the medication I was on, there was a disconnect, a delay between my thoughts & being able to form them as words in my mouth. 
People might not have noticed, or perhaps just thought I spoke slowly - or was a bit dense. At times, however, it was very pronounced. It could take me a full minute to get out a sentence. I could see and feel it really testing people’s patience.
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. ‘Just spit it out!’ .
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I bored myself with the struggle of it; so often I just stayed quiet. 
I got incredibly annoyed that, whilst I had plenty of insightful comments & witty banter running through my brain (!), the mere act of translating my thoughts to speech & forcing them out of my mouth was like pushing a pile of slippery boulders, whilst wading through treacle... In the dark. Gagged.

What’s the equivalent to tumbleweed, to describe the cringeworthy wait for a punchline to finally be delivered? I can’t find the word...
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This is @anneleenphoto signing off from my takeover of the @transient_collective Instagram.  I’ve shared some images from my new project ‘Electric Visions’, which I will show at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Maybe see you there?
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#transient #transientcollective #photographycollective #scottishphotography #scottishphotographers #documentaryphotography #documenting #epilepsy #epilepsyawareness #internationalepilepsyday #patriothallgallery #visceral #igersedinburgh #edinburghexhibition #stockbridgeedinburgh #seizure #newwork #landmarks #landmarksexhibition #epilepsyscotland

The distance between us when we communicate... A major issue during my teens and twenties was simply communicating via spoken word. Due to the medication I was on, there was a disconnect, a delay between my thoughts & being able to form them as words in my mouth. People might not have noticed, or perhaps just thought I spoke slowly - or was a bit dense. At times, however, it was very pronounced. It could take me a full minute to get out a sentence. I could see and feel it really testing people’s patience. . . . . ‘Just spit it out!’ . . I bored myself with the struggle of it; so often I just stayed quiet. I got incredibly annoyed that, whilst I had plenty of insightful comments & witty banter running through my brain (!), the mere act of translating my thoughts to speech & forcing them out of my mouth was like pushing a pile of slippery boulders, whilst wading through treacle... In the dark. Gagged. What’s the equivalent to tumbleweed, to describe the cringeworthy wait for a punchline to finally be delivered? I can’t find the word... . . . This is @anneleenphoto signing off from my takeover of the @transient_collective Instagram. I’ve shared some images from my new project ‘Electric Visions’, which I will show at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Maybe see you there? . . . #transient  #transientcollective  #photographycollective  #scottishphotography  #scottishphotographers  #documentaryphotography  #documenting  #epilepsy  #epilepsyawareness  #internationalepilepsyday  #patriothallgallery  #visceral  #igersedinburgh  #edinburghexhibition  #stockbridgeedinburgh  #seizure  #newwork  #landmarks  #landmarksexhibition  #epilepsyscotland 

The distance between us when we communicate... A major issue during my teens and twenties was simply communicating via spoken word. Due to the medication I was on, there was a disconnect, a delay between my thoughts & being able to form them as words in my mouth. 
People might not have noticed, or perhaps just thought I spoke slowly - or was a bit dense. At times, however, it was very pronounced. It could take me a full minute to get out a sentence. I could see and feel it really testing people’s patience.
.
.
.
. ‘Just spit it out!’ .
.
I bored myself with the struggle of it; so often I just stayed quiet. 
I got incredibly annoyed that, whilst I had plenty of insightful comments & witty banter running through my brain (!), the mere act of translating my thoughts to speech & forcing them out of my mouth was like pushing a pile of slippery boulders, whilst wading through treacle... In the dark. Gagged.

What’s the equivalent to tumbleweed, to describe the cringeworthy wait for a punchline to finally be delivered? I can’t find the word...
.
.
.
This is @anneleenphoto signing off from my takeover of the @transient_collective Instagram.  I’ve shared some images from my new project ‘Electric Visions’, which I will show at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Maybe see you there?
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#transient #transientcollective #photographycollective #scottishphotography #scottishphotographers #documentaryphotography #documenting #epilepsy #epilepsyawareness #internationalepilepsyday #patriothallgallery #visceral #igersedinburgh #edinburghexhibition #stockbridgeedinburgh #seizure #newwork #landmarks #landmarksexhibition #epilepsyscotland

The distance between us when we communicate... A major issue during my teens and twenties was simply communicating via spoken word. Due to the medication I was on, there was a disconnect, a delay between my thoughts & being able to form them as words in my mouth. People might not have noticed, or perhaps just thought I spoke slowly - or was a bit dense. At times, however, it was very pronounced. It could take me a full minute to get out a sentence. I could see and feel it really testing people’s patience. . . . . ‘Just spit it out!’ . . I bored myself with the struggle of it; so often I just stayed quiet. I got incredibly annoyed that, whilst I had plenty of insightful comments & witty banter running through my brain (!), the mere act of translating my thoughts to speech & forcing them out of my mouth was like pushing a pile of slippery boulders, whilst wading through treacle... In the dark. Gagged. What’s the equivalent to tumbleweed, to describe the cringeworthy wait for a punchline to finally be delivered? I can’t find the word... . . . This is @anneleenphoto signing off from my takeover of the @transient_collective Instagram. I’ve shared some images from my new project ‘Electric Visions’, which I will show at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Maybe see you there? . . . #transient  #transientcollective  #photographycollective  #scottishphotography  #scottishphotographers  #documentaryphotography  #documenting  #epilepsy  #epilepsyawareness  #internationalepilepsyday  #patriothallgallery  #visceral  #igersedinburgh  #edinburghexhibition  #stockbridgeedinburgh  #seizure  #newwork  #landmarks  #landmarksexhibition  #epilepsyscotland 

All is hazy and fragmented.

It’s hard to put a frame on what just happened to me. It’s not neat. It’s shaky. All is uncertain and my sense of self is fragile, disembodied. 
The one clear point of focus is the searing pain between my eyes. 
My body betrayed me, again. .
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This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy & having my first seizure in 5 years. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see the last few posts for more info on the project and our upcoming exhibition.
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#transient #transientcollective #photographycollective #scottishphotography #scottishphotographers #documentaryphotography #documenting #epilepsy #epilepsyawareness #internationalepilepsyday #patriothallgallery #visceral #igersedinburgh #edinburghexhibition #stockbridgeedinburgh #seizure #newwork #landmarks #landmarksexhibition #epilepsyscotland

All is hazy and fragmented. It’s hard to put a frame on what just happened to me. It’s not neat. It’s shaky. All is uncertain and my sense of self is fragile, disembodied. The one clear point of focus is the searing pain between my eyes. My body betrayed me, again. . . . This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy & having my first seizure in 5 years. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see the last few posts for more info on the project and our upcoming exhibition. . . . #transient  #transientcollective  #photographycollective  #scottishphotography  #scottishphotographers  #documentaryphotography  #documenting  #epilepsy  #epilepsyawareness  #internationalepilepsyday  #patriothallgallery  #visceral  #igersedinburgh  #edinburghexhibition  #stockbridgeedinburgh  #seizure  #newwork  #landmarks  #landmarksexhibition  #epilepsyscotland 

Nesta semana do dia Internacional da Epilepsia publicamos mais uma história de superação! Parabéns  Livia e Eduardo e obrigado por compartilharem sua história! “Este é meu filho Eduardo de 9 anos... Descobrimos a Epilepsia aos 6 anos depois de uma crise forte, mas depois a Neuro nos explicou q pelos relatos de desmaios dele desde os 5 meses ele começou com uma crise de ausência q infelizmente evoluiu para uma Epilepsia do Lobo Temporal... Hj as crises estão bem controladas devido ao uso da Carbamazepina... Ele além da Epilepsia é portador de Dislexia e alergia alimentar... Não tem a idade mental correspondente a idade corporal, mas ele é incrível é muito inteligente... Nesta foto ele exibe seu primeiro troféu de melhor goleiro e a medalha de 3• lugar no Campeonato de Futebol Socyte.. Em Dezembro ganhou outro troféu de Goleiro menos vazado do campeonato e o time foi campeão... É muito orgulho né? Amo meu menino de ouro q me ensina algo todos os dias 🥰👼🏻”
#internationalepilepsyday #epilepsyday2019 #epilepsia #associaçãobrasileiradeepilepsia#ligabrasileiradeepilepsia #epibrasil

Nesta semana do dia Internacional da Epilepsia publicamos mais uma história de superação! Parabéns Livia e Eduardo e obrigado por compartilharem sua história! “Este é meu filho Eduardo de 9 anos... Descobrimos a Epilepsia aos 6 anos depois de uma crise forte, mas depois a Neuro nos explicou q pelos relatos de desmaios dele desde os 5 meses ele começou com uma crise de ausência q infelizmente evoluiu para uma Epilepsia do Lobo Temporal... Hj as crises estão bem controladas devido ao uso da Carbamazepina... Ele além da Epilepsia é portador de Dislexia e alergia alimentar... Não tem a idade mental correspondente a idade corporal, mas ele é incrível é muito inteligente... Nesta foto ele exibe seu primeiro troféu de melhor goleiro e a medalha de 3• lugar no Campeonato de Futebol Socyte.. Em Dezembro ganhou outro troféu de Goleiro menos vazado do campeonato e o time foi campeão... É muito orgulho né? Amo meu menino de ouro q me ensina algo todos os dias 🥰👼🏻” #internationalepilepsyday  #epilepsyday2019  #epilepsia  #associaçãobrasileiradeepilepsia #ligabrasileiradeepilepsia  #epibrasil 

Piove però siamo fuori pericolo.⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀⠀🗓 Febbraio 2019⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ 📍 Reggio nell’Emilia , (IT)⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ #epilessianonmifaipaura #internationalepilepsyday #epilepsy #purple #city #calatrava #reggio #emilia #romagna #lovesemilia #nofilter #fight #people #patience #children #childhood #street #bridge #architecture #monumental #beautiful #night #magnifique #landscape #soldi #remember #италия #россия #поэзия

Piove però siamo fuori pericolo.⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀⠀🗓 Febbraio 2019⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ 📍 Reggio nell’Emilia , (IT)⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ #epilessianonmifaipaura  #internationalepilepsyday  #epilepsy  #purple  #city  #calatrava  #reggio  #emilia  #romagna  #lovesemilia  #nofilter  #fight  #people  #patience  #children  #childhood  #street  #bridge  #architecture  #monumental  #beautiful  #night  #magnifique  #landscape  #soldi  #remember  #италия  #россия  #поэзия 

All is hazy and fragmented.

It’s hard to put a frame on what just happened to me. It’s not neat. It’s shaky. All is uncertain and my sense of self is fragile, disembodied. 
The one clear point of focus is the searing pain between my eyes. 
My body betrayed me, again. .
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This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy & having my first seizure in 5 years. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see the last few posts for more info on the project and our upcoming exhibition.
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#transient #transientcollective #photographycollective #scottishphotography #scottishphotographers #documentaryphotography #documenting #epilepsy #epilepsyawareness #internationalepilepsyday #patriothallgallery #visceral #igersedinburgh #edinburghexhibition #stockbridgeedinburgh #seizure #newwork #landmarks #landmarksexhibition #epilepsyscotland

All is hazy and fragmented. It’s hard to put a frame on what just happened to me. It’s not neat. It’s shaky. All is uncertain and my sense of self is fragile, disembodied. The one clear point of focus is the searing pain between my eyes. My body betrayed me, again. . . . This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy & having my first seizure in 5 years. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see the last few posts for more info on the project and our upcoming exhibition. . . . #transient  #transientcollective  #photographycollective  #scottishphotography  #scottishphotographers  #documentaryphotography  #documenting  #epilepsy  #epilepsyawareness  #internationalepilepsyday  #patriothallgallery  #visceral  #igersedinburgh  #edinburghexhibition  #stockbridgeedinburgh  #seizure  #newwork  #landmarks  #landmarksexhibition  #epilepsyscotland 

Great job @torierobinson10 and thanks for wearing the neuron necklace! ❤️❤️
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It was wonderful being live on SKY news to talk about epilepsy on International Epilepsy Day! 💜🧠⚡️ Check out the vid on my YouTube: https://youtu.be/kjsHXGJBt-A
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Check out my lovely Neuron necklace too - by @sciencejewelry1824 !! 🧠
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#internationalepilepsyday #epilepsy #skynews

Great job @torierobinson10 and thanks for wearing the neuron necklace! ❤️❤️ ・・・ It was wonderful being live on SKY news to talk about epilepsy on International Epilepsy Day! 💜🧠⚡️ Check out the vid on my YouTube: https://youtu.be/kjsHXGJBt-A . Check out my lovely Neuron necklace too - by @sciencejewelry1824 !! 🧠 . . . . #internationalepilepsyday  #epilepsy  #skynews 

Media on Epilepsy Awareness Rickshaw Train by National Epilepsy Centre, JPMC. Sponsor: Surge Laboratories. #EPILEPSYDAY #EpilepsySupportPakistan #EpilepsyAssociationOfPakistan #NationalEpilepsyCentreKarachi #epilepsy #epilepsyawareness #NationalEpilepsyCentreKarachi #nationalepilepsycentre #stigma #RemoveStigma #stigmafree #PeopleWithEpilepsy #Support #GiveWingsToFly #FlameofHope #talkepilepsy #AdvocateEpilepsy #FriendsofEpilepsy #InternationalEpilepsyDay #media
Today is #internationalepilepsyday Be a part of the fight, the study, the hope, the cure. Hug the #seizurewarrior in your life. Let them know you are there for them. 💜 #warrior #iwillnevergiveup #seizure #seizuressuck #seizures #survivor #fighter #dontgiveup #hope #cannawarriors #cannabis #cannabiscommunity #cbd #cbdforlife #cbdforseizures #marijuana #medicalmarijuana #medicalmarijuanapatient #medicalmarijuanaadvocate #420 #redhair #redhead #curlyhair #greeneyes #instagood #iwillsurvive #thistooshallpass
I taste metal.

My head feels so heavy.

Why am I half-dressed, half-sitting, half-lying against the wall in the doorway of our bedroom?

I’m running late.
I have to get up... I’ll miss the train.

My legs are pulled down by invisible weights.
I’m lost.
The taste is blood.
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This is @anneleenphoto taking over the Transient Collective @transient_collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see the last couple of posts for more info on the project and our upcoming exhibition.
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#transient #transientcollective #photographycollective #scottishphotography #scottishphotographers #documentaryphotography #documenting #epilepsy #epilepsyawareness #internationalepilepsyday #patriothallgallery #visceral #igersedinburgh #edinburghexhibition #stockbridgeedinburgh #seizure #newwork #landmarks #landmarksexhibition #epilepsyscotland

I taste metal. My head feels so heavy. Why am I half-dressed, half-sitting, half-lying against the wall in the doorway of our bedroom? I’m running late. I have to get up... I’ll miss the train. My legs are pulled down by invisible weights. I’m lost. The taste is blood. . . . . This is @anneleenphoto taking over the Transient Collective @transient_collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see the last couple of posts for more info on the project and our upcoming exhibition. . . . #transient  #transientcollective  #photographycollective  #scottishphotography  #scottishphotographers  #documentaryphotography  #documenting  #epilepsy  #epilepsyawareness  #internationalepilepsyday  #patriothallgallery  #visceral  #igersedinburgh  #edinburghexhibition  #stockbridgeedinburgh  #seizure  #newwork  #landmarks  #landmarksexhibition  #epilepsyscotland 

I taste metal.

My head feels so heavy.

Why am I half-dressed, half-sitting, half-lying against the wall in the doorway of our bedroom?

I’m running late.
I have to get up... I’ll miss the train.

My legs are pulled down by invisible weights.
I’m lost.
The taste is blood.
.
.
.
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This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see the last couple of posts for more info on the project and our upcoming exhibition.
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#transient #transientcollective #photographycollective #scottishphotography #scottishphotographers #documentaryphotography #documenting #epilepsy #epilepsyawareness #internationalepilepsyday #patriothallgallery #visceral #igersedinburgh #edinburghexhibition #stockbridgeedinburgh #seizure #newwork #landmarks #landmarksexhibition #epilepsyscotland

I taste metal. My head feels so heavy. Why am I half-dressed, half-sitting, half-lying against the wall in the doorway of our bedroom? I’m running late. I have to get up... I’ll miss the train. My legs are pulled down by invisible weights. I’m lost. The taste is blood. . . . . This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see the last couple of posts for more info on the project and our upcoming exhibition. . . . #transient  #transientcollective  #photographycollective  #scottishphotography  #scottishphotographers  #documentaryphotography  #documenting  #epilepsy  #epilepsyawareness  #internationalepilepsyday  #patriothallgallery  #visceral  #igersedinburgh  #edinburghexhibition  #stockbridgeedinburgh  #seizure  #newwork  #landmarks  #landmarksexhibition  #epilepsyscotland 

This will be one of the most inspiring subjects you'll ever listen to.

Tune in, 11am this Thursday on @nigeriainfofmlagos as Seyi Aragbada shares her battles and victories over Epilepsy.

Reposted from @epilepsynigeria -  Still in the spirit of celebrating #InternationalEpilepsyDay and raising funds to establish the First Epilepsy Centre in Africa. 
I have been invited to speak about #Epilepsy on #TheRoleModelShow with Emmanuel Oyewole (@emma4impact ) this Thursday 11AM💃🏻 .
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PLEASE TUNE IN 💜
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#epilepsynigeria #epilepsyfoundationofnigeria - #regrann

This will be one of the most inspiring subjects you'll ever listen to. Tune in, 11am this Thursday on @nigeriainfofmlagos as Seyi Aragbada shares her battles and victories over Epilepsy. Reposted from @epilepsynigeria - Still in the spirit of celebrating #InternationalEpilepsyDay  and raising funds to establish the First Epilepsy Centre in Africa. I have been invited to speak about #Epilepsy  on #TheRoleModelShow  with Emmanuel Oyewole (@emma4impact ) this Thursday 11AM💃🏻 . . PLEASE TUNE IN 💜 . . #epilepsynigeria  #epilepsyfoundationofnigeria  - #regrann 

Epilepsinin ne kadar farkındasın? Soğan koklatmak gibi doğru bilinen yanlışları sil epilepsinin farkında ol! Söylemekten çekinme; Epilepsi hastasıyım!!! Evet evet yanlış okumadınız ben 15 yaşımdan beri epilepsi hastasıyım yani sizlerin bildiği “SARA”! Valla benim içime cin kaçmadı da çarpmadı da... Bildiğiniz ve gördüğünüz kadarıyla sosyal hayatım devam ediyor, arabamı kullanıyorum, işime gidiyorum. Çok şükür 🙏🏻🙏🏻🙏🏻 Çok fazla çeşidi var bu hastalığın kimi doğuştan, kimi sonradan...benimki ise sonradan çıktı. Herneyse biraz önyargıları kaldıralım, bilinçlenelim farkındalığımız artsın diye iki satır bişiiler karalamak istedim. Çünkü bu önyargılar yüzünden okula gidemeyen çocuklar var. Ayrıca biliyor musunuz ömrünüzde 1 kere de olsa bu atağı geçiriyorsunuz! #epilepsiiçinbak #epilepsiicinbak #13ŞubatDünyaEpilepsiGünü #13thFebruaryInternationalEpilepsyDay #epilepsyalertwatch #embracewatch #empaticaalert #epilepsyday2019 #epilepsy #empaticawatch #internationalepilepsyday2019 #internationalepilepsyday

Epilepsinin ne kadar farkındasın? Soğan koklatmak gibi doğru bilinen yanlışları sil epilepsinin farkında ol! Söylemekten çekinme; Epilepsi hastasıyım!!! Evet evet yanlış okumadınız ben 15 yaşımdan beri epilepsi hastasıyım yani sizlerin bildiği “SARA”! Valla benim içime cin kaçmadı da çarpmadı da... Bildiğiniz ve gördüğünüz kadarıyla sosyal hayatım devam ediyor, arabamı kullanıyorum, işime gidiyorum. Çok şükür 🙏🏻🙏🏻🙏🏻 Çok fazla çeşidi var bu hastalığın kimi doğuştan, kimi sonradan...benimki ise sonradan çıktı. Herneyse biraz önyargıları kaldıralım, bilinçlenelim farkındalığımız artsın diye iki satır bişiiler karalamak istedim. Çünkü bu önyargılar yüzünden okula gidemeyen çocuklar var. Ayrıca biliyor musunuz ömrünüzde 1 kere de olsa bu atağı geçiriyorsunuz! #epilepsiiçinbak  #epilepsiicinbak  #13ŞubatDünyaEpilepsiGünü  #13thFebruaryInternationalEpilepsyDay  #epilepsyalertwatch  #embracewatch  #empaticaalert  #epilepsyday2019  #epilepsy  #empaticawatch  #internationalepilepsyday2019  #internationalepilepsyday 

_برگزاری همایش روز جهانی صرع بهانه ایست تا بگوییم "با صرع تنها نمانید"
پس تلاش می کنیم همه در کنار هم یک صدا فریاد بزنیم
 برای صرع به پا خیزیم
🦋🙏🏻💟🎗
#ورود_عموم_آزاد
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#internationalepilepsyday #internationalepilepsyday2019 #internationalepilepsyday2018 #برای_صرع_بپاخیزیم 
#انجمن_خیریه_صرع_اصفهان #صرع #epilepsy  #hope ##همایش #روزجهانی_صرع #برای_صرع_بپاخیزیم  #epilepsyday #international_epilepsy_day
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_برگزاری همایش روز جهانی صرع بهانه ایست تا بگوییم "با صرع تنها نمانید" پس تلاش می کنیم همه در کنار هم یک صدا فریاد بزنیم برای صرع به پا خیزیم 🦋🙏🏻💟🎗 #ورود_عموم_آزاد  __________________________________________ #internationalepilepsyday  #internationalepilepsyday2019  #internationalepilepsyday2018  #برای_صرع_بپاخیزیم  #انجمن_خیریه_صرع_اصفهان  #صرع  #epilepsy  #hope  ##همایش  #روزجهانی_صرع  #برای_صرع_بپاخیزیم  #epilepsyday  #international_epilepsy_day  ______________________

- Don't let anything stop you from smiling -
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Lunedì era la giornata internazionale dell'epilessia. Convivo ormai da tanto con questo irritante compagno di viaggio che spesso definisco come un raffreddore che ogni tanto si fa sentire . 
Mi sono sempre sentita sola nel provare una costante paura che il mio corpo decidesse di andare in cortocircuito e pensavo che pochi potessero comprendere quel terribile senso di impotenza, frustrazione e paura che ti accompagna mentre cerchi di rimetterti in sesto. 
Lunedì, per la prima volta, ascoltando un'intervista al telegiornale, ho sentito un ragazzo descrivere quel malessere che mi porto appresso proprio come l'avrei fatto io. Continuando ad ascoltare, ho scoperto che non sono poche le persone costrette a convivere con questo compagno di viaggio. Come me ci sono 500mila persone e 500mila famiglie che, come la mia, convivono con l'epilessia.
Non ho mai permesso che questa malattia (che comparata con tante altre vien da sorridere) limitasse la mia vita, mi facesse perdere il sorriso o mi scorraggiasse. Per questo devo dire grazie. Grazie alla mia famiglia @jacopovanone e ad @arekushisuruizu che mi sono sempre vicini, nonostante si debbano sorbire un terribile incubo tutte le volte che "mi spengo". Grazie ai medici che mi hanno in cura e che sopportano ogni volta i miei sfoghi liberatori. Ma soprattutto grazie ai ricercatori, che cercano ogni giorno di trovare un modo per alleviare pazienti e famiglie di un fastidioso compagno di viaggio qual'è l'epilessia. A tutte queste persone voglio dedicare un enorme sorriso. Quello stesso sorriso che spero anche le altre 500mila persone che soffrono di epilessia, non abbiano perso. 
#epilepsy #internationalepilepsyday #dontstopsmiling #thankyou #friends #family #love #researchers

- Don't let anything stop you from smiling - . . . Lunedì era la giornata internazionale dell'epilessia. Convivo ormai da tanto con questo irritante compagno di viaggio che spesso definisco come un raffreddore che ogni tanto si fa sentire . Mi sono sempre sentita sola nel provare una costante paura che il mio corpo decidesse di andare in cortocircuito e pensavo che pochi potessero comprendere quel terribile senso di impotenza, frustrazione e paura che ti accompagna mentre cerchi di rimetterti in sesto. Lunedì, per la prima volta, ascoltando un'intervista al telegiornale, ho sentito un ragazzo descrivere quel malessere che mi porto appresso proprio come l'avrei fatto io. Continuando ad ascoltare, ho scoperto che non sono poche le persone costrette a convivere con questo compagno di viaggio. Come me ci sono 500mila persone e 500mila famiglie che, come la mia, convivono con l'epilessia. Non ho mai permesso che questa malattia (che comparata con tante altre vien da sorridere) limitasse la mia vita, mi facesse perdere il sorriso o mi scorraggiasse. Per questo devo dire grazie. Grazie alla mia famiglia @jacopovanone e ad @arekushisuruizu che mi sono sempre vicini, nonostante si debbano sorbire un terribile incubo tutte le volte che "mi spengo". Grazie ai medici che mi hanno in cura e che sopportano ogni volta i miei sfoghi liberatori. Ma soprattutto grazie ai ricercatori, che cercano ogni giorno di trovare un modo per alleviare pazienti e famiglie di un fastidioso compagno di viaggio qual'è l'epilessia. A tutte queste persone voglio dedicare un enorme sorriso. Quello stesso sorriso che spero anche le altre 500mila persone che soffrono di epilessia, non abbiano perso. #epilepsy  #internationalepilepsyday  #dontstopsmiling  #thankyou  #friends  #family  #love  #researchers 

Reposted from @benola_cpi -  Remain strong Conner and more of God's richest blessings upon your life in the years ahead!🙏🏾👏🏽🤝🏾🤗🌹Reposted from @ourlifeafternicu -  #internationalepilepsyday there are no words to say how thankful I am that Conner is two year’s seizure free. In January 2017, Conner was diagnosed with a rare form of epilepsy called infantile spasms(IS). IS is scary for so many reasons. It causes severe damage to the child - I believe that Conner’s cortical visual impairment was caused by his IS. Conner also declined developmentally. For a child already developmentally delayed, this was a major setback. The scariest part is trying to get IS controlled. ACTH is the treatment we selected for Conner because it has the highest chance of stopping the seizures (about 50%). Infantile spasms is often missed because it can resemble lack of head control or a startle response. 
Conner’s epilepsy is currently controlled, but that doesn’t mean we don’t have to worry anymore. Unfortunately, epilepsy can return and in Conner’s case (because of his PVL), chances of it returning in a different form are high. Not a day goes by that I don’t worry about seizures, but I take comfort in seeing Conner continue to progress. ❤️💪🏼 - #cerebralpalsy #cerebralpasyawareness #epilepsi #seizure #spasm #developmentaldelays #disability #disabilityawareness #worry #anxiety #advocacy #information #knowledge #capacitybuilding  #specialneedsmum #specialneedsfamily #specialneedschild #specialones #caregiver #carer #therapist #healthcare #awareness #support #supportcp #supportoneanother #disabilityisamindthing #disablednotless #differentisbeautiful

Reposted from @benola_cpi - Remain strong Conner and more of God's richest blessings upon your life in the years ahead!🙏🏾👏🏽🤝🏾🤗🌹Reposted from @ourlifeafternicu - #internationalepilepsyday  there are no words to say how thankful I am that Conner is two year’s seizure free. In January 2017, Conner was diagnosed with a rare form of epilepsy called infantile spasms(IS). IS is scary for so many reasons. It causes severe damage to the child - I believe that Conner’s cortical visual impairment was caused by his IS. Conner also declined developmentally. For a child already developmentally delayed, this was a major setback. The scariest part is trying to get IS controlled. ACTH is the treatment we selected for Conner because it has the highest chance of stopping the seizures (about 50%). Infantile spasms is often missed because it can resemble lack of head control or a startle response. Conner’s epilepsy is currently controlled, but that doesn’t mean we don’t have to worry anymore. Unfortunately, epilepsy can return and in Conner’s case (because of his PVL), chances of it returning in a different form are high. Not a day goes by that I don’t worry about seizures, but I take comfort in seeing Conner continue to progress. ❤️💪🏼 - #cerebralpalsy  #cerebralpasyawareness  #epilepsi  #seizure  #spasm  #developmentaldelays  #disability  #disabilityawareness  #worry  #anxiety  #advocacy  #information  #knowledge  #capacitybuilding   #specialneedsmum  #specialneedsfamily  #specialneedschild  #specialones  #caregiver  #carer  #therapist  #healthcare  #awareness  #support  #supportcp  #supportoneanother  #disabilityisamindthing  #disablednotless  #differentisbeautiful 

Reposted from @benola_cpi -  Remain strong Conner and more of God's richest blessings upon your life in the years ahead!🙏🏾👏🏽🤝🏾🤗🌹Reposted from @ourlifeafternicu -  #internationalepilepsyday there are no words to say how thankful I am that Conner is two year’s seizure free. In January 2017, Conner was diagnosed with a rare form of epilepsy called infantile spasms(IS). IS is scary for so many reasons. It causes severe damage to the child - I believe that Conner’s cortical visual impairment was caused by his IS. Conner also declined developmentally. For a child already developmentally delayed, this was a major setback. The scariest part is trying to get IS controlled. ACTH is the treatment we selected for Conner because it has the highest chance of stopping the seizures (about 50%). Infantile spasms is often missed because it can resemble lack of head control or a startle response. 
Conner’s epilepsy is currently controlled, but that doesn’t mean we don’t have to worry anymore. Unfortunately, epilepsy can return and in Conner’s case (because of his PVL), chances of it returning in a different form are high. Not a day goes by that I don’t worry about seizures, but I take comfort in seeing Conner continue to progress. ❤️💪🏼 - #cerebralpalsy #cerebralpasyawareness #epilepsi #seizure #spasm #developmentaldelays #disability #disabilityawareness #worry #anxiety #advocacy #information #knowledge #capacitybuilding  #specialneedsmum #specialneedsfamily #specialneedschild #specialones #caregiver #carer #therapist #healthcare #awareness #support #supportcp #supportoneanother #disabilityisamindthing #disablednotless #differentisbeautiful

Reposted from @benola_cpi - Remain strong Conner and more of God's richest blessings upon your life in the years ahead!🙏🏾👏🏽🤝🏾🤗🌹Reposted from @ourlifeafternicu - #internationalepilepsyday  there are no words to say how thankful I am that Conner is two year’s seizure free. In January 2017, Conner was diagnosed with a rare form of epilepsy called infantile spasms(IS). IS is scary for so many reasons. It causes severe damage to the child - I believe that Conner’s cortical visual impairment was caused by his IS. Conner also declined developmentally. For a child already developmentally delayed, this was a major setback. The scariest part is trying to get IS controlled. ACTH is the treatment we selected for Conner because it has the highest chance of stopping the seizures (about 50%). Infantile spasms is often missed because it can resemble lack of head control or a startle response. Conner’s epilepsy is currently controlled, but that doesn’t mean we don’t have to worry anymore. Unfortunately, epilepsy can return and in Conner’s case (because of his PVL), chances of it returning in a different form are high. Not a day goes by that I don’t worry about seizures, but I take comfort in seeing Conner continue to progress. ❤️💪🏼 - #cerebralpalsy  #cerebralpasyawareness  #epilepsi  #seizure  #spasm  #developmentaldelays  #disability  #disabilityawareness  #worry  #anxiety  #advocacy  #information  #knowledge  #capacitybuilding   #specialneedsmum  #specialneedsfamily  #specialneedschild  #specialones  #caregiver  #carer  #therapist  #healthcare  #awareness  #support  #supportcp  #supportoneanother  #disabilityisamindthing  #disablednotless  #differentisbeautiful 

Remain strong Conner and more of God's richest blessings upon your life in the years ahead!🙏🏾👏🏽🤝🏾🤗🌹Reposted from @ourlifeafternicu -  #internationalepilepsyday there are no words to say how thankful I am that Conner is two year’s seizure free. In January 2017, Conner was diagnosed with a rare form of epilepsy called infantile spasms(IS). IS is scary for so many reasons. It causes severe damage to the child - I believe that Conner’s cortical visual impairment was caused by his IS. Conner also declined developmentally. For a child already developmentally delayed, this was a major setback. The scariest part is trying to get IS controlled. ACTH is the treatment we selected for Conner because it has the highest chance of stopping the seizures (about 50%). Infantile spasms is often missed because it can resemble lack of head control or a startle response. 
Conner’s epilepsy is currently controlled, but that doesn’t mean we don’t have to worry anymore. Unfortunately, epilepsy can return and in Conner’s case (because of his PVL), chances of it returning in a different form are high. Not a day goes by that I don’t worry about seizures, but I take comfort in seeing Conner continue to progress. ❤️💪🏼 - #cerebralpalsy #cerebralpasyawareness #epilepsi #seizure #spasm #developmentaldelays #disability #disabilityawareness #worry #anxiety #advocacy #information #knowledge #capacitybuilding  #specialneedsmum #specialneedsfamily #specialneedschild #specialones #caregiver #carer #therapist #healthcare #awareness #support #supportcp #supportoneanother #disabilityisamindthing #disablednotless #differentisbeautiful

Remain strong Conner and more of God's richest blessings upon your life in the years ahead!🙏🏾👏🏽🤝🏾🤗🌹Reposted from @ourlifeafternicu - #internationalepilepsyday  there are no words to say how thankful I am that Conner is two year’s seizure free. In January 2017, Conner was diagnosed with a rare form of epilepsy called infantile spasms(IS). IS is scary for so many reasons. It causes severe damage to the child - I believe that Conner’s cortical visual impairment was caused by his IS. Conner also declined developmentally. For a child already developmentally delayed, this was a major setback. The scariest part is trying to get IS controlled. ACTH is the treatment we selected for Conner because it has the highest chance of stopping the seizures (about 50%). Infantile spasms is often missed because it can resemble lack of head control or a startle response. Conner’s epilepsy is currently controlled, but that doesn’t mean we don’t have to worry anymore. Unfortunately, epilepsy can return and in Conner’s case (because of his PVL), chances of it returning in a different form are high. Not a day goes by that I don’t worry about seizures, but I take comfort in seeing Conner continue to progress. ❤️💪🏼 - #cerebralpalsy  #cerebralpasyawareness  #epilepsi  #seizure  #spasm  #developmentaldelays  #disability  #disabilityawareness  #worry  #anxiety  #advocacy  #information  #knowledge  #capacitybuilding   #specialneedsmum  #specialneedsfamily  #specialneedschild  #specialones  #caregiver  #carer  #therapist  #healthcare  #awareness  #support  #supportcp  #supportoneanother  #disabilityisamindthing  #disablednotless  #differentisbeautiful 

Yesterday was International Epilepsy Awareness Day. We can’t believe it’s been 10 days since Sophie was diagnosed with Infantile Spasms. Infantile Spasms are a rare form of seizure and a very serious form of epilepsy and affect only about 1200  per year. Children’s Hospital Colorado said they only diagnosis about 1 kiddo per month. That’s only 12 per year. I’m shocked.  It often has a very subtle appearance so it is difficult for parents /doctors to recognize that it is a serious problem. We’re praying for healing. For treatment to work. For her little body, and for us to be strengthened. We pray that we’d sense more than ever that we are surrounded by God. And we pray her story and our lives would be a light that points to Jesus. 
#epilepsyawareness #internationalepilepsyday #infantilespasms #isaiah4110

Yesterday was International Epilepsy Awareness Day. We can’t believe it’s been 10 days since Sophie was diagnosed with Infantile Spasms. Infantile Spasms are a rare form of seizure and a very serious form of epilepsy and affect only about 1200 per year. Children’s Hospital Colorado said they only diagnosis about 1 kiddo per month. That’s only 12 per year. I’m shocked. It often has a very subtle appearance so it is difficult for parents /doctors to recognize that it is a serious problem. We’re praying for healing. For treatment to work. For her little body, and for us to be strengthened. We pray that we’d sense more than ever that we are surrounded by God. And we pray her story and our lives would be a light that points to Jesus. #epilepsyawareness  #internationalepilepsyday  #infantilespasms  #isaiah4110 

#Internationalepilepsyday 💜💜💜 here are pics of my 🧠 surgery in 2011!! Scroll to see my wide open 🧠 w/ wires attached!!! I hope it helps support/spread awareness. 1 out of 100 people have epilepsy. CANNABIS HELPS!! I’m a day late but #FuckEpilepsy @rarextracts_cbd vaping cbd in my hospital room 😜😏#epilepsyawarness #epilepsy #epilepsywarrior #epilepticwarrior #cannabiscommunity #🧠#💜#cannabisculture #cannabis #cannabiscures #cbd #thc #life #health #cure #healthy #cbdcures #medicine #cannabisismedicine #supportcannabis #brainsurgery @mayoclinic #mayoclinic #hash #fueledbythc #fueledbycbd #cannabinoids #surgery

#Internationalepilepsyday  💜💜💜 here are pics of my 🧠 surgery in 2011!! Scroll to see my wide open 🧠 w/ wires attached!!! I hope it helps support/spread awareness. 1 out of 100 people have epilepsy. CANNABIS HELPS!! I’m a day late but #FuckEpilepsy  @rarextracts_cbd vaping cbd in my hospital room 😜😏#epilepsyawarness  #epilepsy  #epilepsywarrior  #epilepticwarrior  #cannabiscommunity  #🧠#💜#cannabisculture  #cannabis  #cannabiscures  #cbd  #thc  #life  #health  #cure  #healthy  #cbdcures  #medicine  #cannabisismedicine  #supportcannabis  #brainsurgery  @mayoclinic #mayoclinic  #hash  #fueledbythc  #fueledbycbd  #cannabinoids  #surgery 

It’s international epilepsy day. As someone who was born with it it’s a very important day of awareness for me. Not all people are born with epilepsy BUT there are instances where it can be diagnosed later in life. Thanks to Gods green gifts there are natural alternatives to medicate with. These natural methods of medicating have now grown to include Filipino cannabis cuisine.

It’s international epilepsy day. As someone who was born with it it’s a very important day of awareness for me. Not all people are born with epilepsy BUT there are instances where it can be diagnosed later in life. Thanks to Gods green gifts there are natural alternatives to medicate with. These natural methods of medicating have now grown to include Filipino cannabis cuisine.

Cannabis is an incredible plant!

#Repost @hightimesmagazine (@get_repost)
・・・
💜🌿 So many are living better lives thanks to cannabis. 📸: @theheatherderose
・・・
"It’s International Epilepsy Day! I’ve been seizure free almost 22 months now and am super excited about the 2 year milestone coming up! 💜🌱 Cannabis has the ability to help the millions of people suffering from epilepsy, as well as many other conditions! This plant needs to be available for every single person to benefit from! 💚🌱🙌🏼 " [Cont. on @theheatherderose post] #InternationalEpilepsyDay #epilepsy

Cannabis is an incredible plant! #Repost  @hightimesmagazine (@get_repost) ・・・ 💜🌿 So many are living better lives thanks to cannabis. 📸: @theheatherderose ・・・ "It’s International Epilepsy Day! I’ve been seizure free almost 22 months now and am super excited about the 2 year milestone coming up! 💜🌱 Cannabis has the ability to help the millions of people suffering from epilepsy, as well as many other conditions! This plant needs to be available for every single person to benefit from! 💚🌱🙌🏼 " [Cont. on @theheatherderose post] #InternationalEpilepsyDay  #epilepsy 

Happy #internationalepilepsyday, I’m new to this diagnosis and life but thankful for the research, and ongoing studies on natural healing.  My son Josh {5}was diagnosed with childhood absences epilepsy last month and since we are a functional medicine kind of folks, we are treating the root cause rather than the symptoms. Today, we are thankful for minimal seizures thanks to whole real food, and CBD. .
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Today, I made Josh this @superfoodshot enhanced chia pudding for his snack, topped with blueberries, blackberries, hemp seeds, shredded coconut and fresh dill. 
Here’s 👇🏽how you can make it: 
warm up 1 cup of UNSWEETENED coconut milk, add 2 1/2 TBSP of @nutiva chia seeds, and 1 TBSP of #superfoodshot and 1 tsp of @navitasorganics açaí powder. Mix all these ingredients together in a glass jar with a lid. Let it stand at room temp for 10-15 min. 
Serve with your favorite toppings. 
#Nourishwithwholefoods

Happy #internationalepilepsyday , I’m new to this diagnosis and life but thankful for the research, and ongoing studies on natural healing. My son Josh {5}was diagnosed with childhood absences epilepsy last month and since we are a functional medicine kind of folks, we are treating the root cause rather than the symptoms. Today, we are thankful for minimal seizures thanks to whole real food, and CBD. . . . Today, I made Josh this @superfoodshot enhanced chia pudding for his snack, topped with blueberries, blackberries, hemp seeds, shredded coconut and fresh dill. Here’s 👇🏽how you can make it: warm up 1 cup of UNSWEETENED coconut milk, add 2 1/2 TBSP of @nutiva chia seeds, and 1 TBSP of #superfoodshot  and 1 tsp of @navitasorganics açaí powder. Mix all these ingredients together in a glass jar with a lid. Let it stand at room temp for 10-15 min. Serve with your favorite toppings. #Nourishwithwholefoods 

Day 2 of my takeover of @transient_collective .
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Suddenly the world contracts, my consciousness becomes hyper-focused, my vision and my brain judder to the side. It’s like a glitch in a TV programme, a scratch on a vinyl record. Everything shifts sideways and back
and stutters
and stutters
and stutters.
My limbs jerk.
My body goes rigid. I realise what’s happening and where this is heading. 
I try to scream, to shout out for help, but my voice, my tongue, my lips won’t work...
Everything vignettes.
The darkness moves from the edges to the centre of my vision. My hearing is replaced by electric ringing.
I fall to the ground, a sinister deafening buzz in my ears.
The darkness is coming, it envelops me.
I go under.
This all happens in a few monumental, world-freezing seconds.
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This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see yesterday’s post for more info on the project.
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#transient #transientcollective #photographycollective #scottishphotography #scottishphotographers #documentaryphotography #documenting #epilepsy #epilepsyawareness #internationalepilepsyday #patriothallgallery #igersedinburgh #edinburghexhibition #stockbridgeedinburgh #seizure #newwork #landmarks #landmarksexhibition #epilepsyscotland

Day 2 of my takeover of @transient_collective . . . Suddenly the world contracts, my consciousness becomes hyper-focused, my vision and my brain judder to the side. It’s like a glitch in a TV programme, a scratch on a vinyl record. Everything shifts sideways and back and stutters and stutters and stutters. My limbs jerk. My body goes rigid. I realise what’s happening and where this is heading. I try to scream, to shout out for help, but my voice, my tongue, my lips won’t work... Everything vignettes. The darkness moves from the edges to the centre of my vision. My hearing is replaced by electric ringing. I fall to the ground, a sinister deafening buzz in my ears. The darkness is coming, it envelops me. I go under. This all happens in a few monumental, world-freezing seconds. . . . This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see yesterday’s post for more info on the project. . . . #transient  #transientcollective  #photographycollective  #scottishphotography  #scottishphotographers  #documentaryphotography  #documenting  #epilepsy  #epilepsyawareness  #internationalepilepsyday  #patriothallgallery  #igersedinburgh  #edinburghexhibition  #stockbridgeedinburgh  #seizure  #newwork  #landmarks  #landmarksexhibition  #epilepsyscotland 

Follow our journey at:@the_3_h_s ⚡️⚡️More people live with epilepsy than with autism spectrum disorders, Parkinson's disease, multiple sclerosis and cerebral palsy – combined. ⚡️⚡️Each and every year in the U.S., 45,000 children under the age of 15 will develop epilepsy. ⚡️⚡️Sudden unexpected Death in Epilepsy (SUDEP) accounts for 34% of all sudden deaths in children. ⚡️⚡️2.2 million troops have served in the current Iraq and Afghanistan conflicts; it is estimated that 440,000 of these soldiers will experience traumatic brain injury (TBI) and more than 100,000 of these soldiers are expected to develop post-traumatic epilepsy (PTE). Learn More at www.epilepsy.com 
#shareyourstory #shareyourscars #invisibleillness #seizuressuck #fuckepilepsy #anxiety #depression #ptsd #epilepsywarrior #endepilepsy #epilepsywarrior #mykidsaremyheroes #dontquit #findacure #BENICE #haveempathy #internationalepilepsyday  #relate #heal #love  Photo Credit 📸: @stillglamorus

Follow our journey at:@the_3_h_s ⚡️⚡️More people live with epilepsy than with autism spectrum disorders, Parkinson's disease, multiple sclerosis and cerebral palsy – combined. ⚡️⚡️Each and every year in the U.S., 45,000 children under the age of 15 will develop epilepsy. ⚡️⚡️Sudden unexpected Death in Epilepsy (SUDEP) accounts for 34% of all sudden deaths in children. ⚡️⚡️2.2 million troops have served in the current Iraq and Afghanistan conflicts; it is estimated that 440,000 of these soldiers will experience traumatic brain injury (TBI) and more than 100,000 of these soldiers are expected to develop post-traumatic epilepsy (PTE). Learn More at www.epilepsy.com #shareyourstory  #shareyourscars  #invisibleillness  #seizuressuck  #fuckepilepsy  #anxiety  #depression  #ptsd  #epilepsywarrior  #endepilepsy  #epilepsywarrior  #mykidsaremyheroes  #dontquit  #findacure  #BENICE  #haveempathy  #internationalepilepsyday  #relate  #heal  #love  Photo Credit 📸: @stillglamorus

⚡️⚡️More people live with epilepsy than with autism spectrum disorders, Parkinson's disease, multiple sclerosis and cerebral palsy – combined. ⚡️⚡️Each and every year in the U.S., 45,000 children under the age of 15 will develop epilepsy. ⚡️⚡️Sudden unexpected Death in Epilepsy (SUDEP) accounts for 34% of all sudden deaths in children. ⚡️⚡️2.2 million troops have served in the current Iraq and Afghanistan conflicts; it is estimated that 440,000 of these soldiers will experience traumatic brain injury (TBI) and more than 100,000 of these soldiers are expected to develop post-traumatic epilepsy (PTE). Learn More at www.epilepsy.com 
#ourlifewithepilepsy #shareyourstory #shareyourscars #invisibleillness #seizuressuck #fuckepilepsy #anxiety #depression #ptsd #epilepsywarrior #endepilepsy #epilepsywarrior #mykidsaremyheroes #dontquit #findacure #BENICE #haveempathy #epilepsymama #internationalepilepsyday  #relate #heal #love  Photo Credit 📸: @stillglamorus

⚡️⚡️More people live with epilepsy than with autism spectrum disorders, Parkinson's disease, multiple sclerosis and cerebral palsy – combined. ⚡️⚡️Each and every year in the U.S., 45,000 children under the age of 15 will develop epilepsy. ⚡️⚡️Sudden unexpected Death in Epilepsy (SUDEP) accounts for 34% of all sudden deaths in children. ⚡️⚡️2.2 million troops have served in the current Iraq and Afghanistan conflicts; it is estimated that 440,000 of these soldiers will experience traumatic brain injury (TBI) and more than 100,000 of these soldiers are expected to develop post-traumatic epilepsy (PTE). Learn More at www.epilepsy.com #ourlifewithepilepsy  #shareyourstory  #shareyourscars  #invisibleillness  #seizuressuck  #fuckepilepsy  #anxiety  #depression  #ptsd  #epilepsywarrior  #endepilepsy  #epilepsywarrior  #mykidsaremyheroes  #dontquit  #findacure  #BENICE  #haveempathy  #epilepsymama  #internationalepilepsyday  #relate  #heal  #love  Photo Credit 📸: @stillglamorus

Suddenly the world contracts, my consciousness becomes hyper-focused, my vision and my brain judder to the side. It’s like a glitch in a TV programme, a scratch on a vinyl record. Everything shifts sideways and back
and stutters
and stutters
and stutters.
My limbs jerk.
My body goes rigid. I realise what’s happening and where this is heading. 
I try to scream, to shout out for help, but my voice, my tongue, my lips won’t work...
Everything vignettes.
The darkness moves from the edges to the centre of my vision. My hearing is replaced by electric ringing.
I fall to the ground, a sinister deafening buzz in my ears.
The darkness is coming, it envelops me.
I go under.
This all happens in a few monumental, world-freezing seconds.
.
.
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This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see yesterday’s post for more info on the project.
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#transient #transientcollective #photographycollective #scottishphotography #scottishphotographers #documentaryphotography #documenting #epilepsy #epilepsyawareness #internationalepilepsyday #patriothallgallery #igersedinburgh #edinburghexhibition #stockbridgeedinburgh #seizure #newwork #landmarks #landmarksexhibition #epilepsyscotland

Suddenly the world contracts, my consciousness becomes hyper-focused, my vision and my brain judder to the side. It’s like a glitch in a TV programme, a scratch on a vinyl record. Everything shifts sideways and back and stutters and stutters and stutters. My limbs jerk. My body goes rigid. I realise what’s happening and where this is heading. I try to scream, to shout out for help, but my voice, my tongue, my lips won’t work... Everything vignettes. The darkness moves from the edges to the centre of my vision. My hearing is replaced by electric ringing. I fall to the ground, a sinister deafening buzz in my ears. The darkness is coming, it envelops me. I go under. This all happens in a few monumental, world-freezing seconds. . . . This is @anneleenphoto taking over the Transient Collective account for the week. I’m sharing some images from my new project ‘Electric Visions’, which is a very personal exploration of my experience of living with epilepsy. I will show work from this series at our group exhibition, ‘Landmarks’, next month at Patriothall Gallery. Please see yesterday’s post for more info on the project. . . . #transient  #transientcollective  #photographycollective  #scottishphotography  #scottishphotographers  #documentaryphotography  #documenting  #epilepsy  #epilepsyawareness  #internationalepilepsyday  #patriothallgallery  #igersedinburgh  #edinburghexhibition  #stockbridgeedinburgh  #seizure  #newwork  #landmarks  #landmarksexhibition  #epilepsyscotland 

#Repost @hightimesmagazine (@get_repost)
・・・and my peeps always talking shit on weed.
💜🌿 So many are living better lives thanks to cannabis. 📸: @theheatherderose
・・・
"It’s International Epilepsy Day! I’ve been seizure free almost 22 months now and am super excited about the 2 year milestone coming up! 💜🌱 Cannabis has the ability to help the millions of people suffering from epilepsy, as well as many other conditions! This plant needs to be available for every single person to benefit from! 💚🌱🙌🏼 " [Cont. on @theheatherderose post] #InternationalEpilepsyDay #epilepsy

#Repost  @hightimesmagazine (@get_repost) ・・・and my peeps always talking shit on weed. 💜🌿 So many are living better lives thanks to cannabis. 📸: @theheatherderose ・・・ "It’s International Epilepsy Day! I’ve been seizure free almost 22 months now and am super excited about the 2 year milestone coming up! 💜🌱 Cannabis has the ability to help the millions of people suffering from epilepsy, as well as many other conditions! This plant needs to be available for every single person to benefit from! 💚🌱🙌🏼 " [Cont. on @theheatherderose post] #InternationalEpilepsyDay  #epilepsy 

Epilepsy Day is very special to us here at Angels Of Epilepsy! We do interact with many survivors and advocates worldwide. So let’s continue to spread the awareness and outreach for epilepsy! And definitely spread the love and support for the many lives affected! 💜 Visit https://www.epilepsy.com/make-difference/public-awareness/international-epilepsy-day

#EpilepsyDay #InternationalEpilepsyDay #EpilepsyEquity #EPILEPSYLIVESMATTER #Epilepsy #Seizures #BrainDisorder #Neuro #Neurology #SupportEpilepsyAwareness #EpilepsyOutreach

Epilepsy Day is very special to us here at Angels Of Epilepsy! We do interact with many survivors and advocates worldwide. So let’s continue to spread the awareness and outreach for epilepsy! And definitely spread the love and support for the many lives affected! 💜 Visit https://www.epilepsy.com/make-difference/public-awareness/international-epilepsy-day #EpilepsyDay  #InternationalEpilepsyDay  #EpilepsyEquity  #EPILEPSYLIVESMATTER  #Epilepsy  #Seizures  #BrainDisorder  #Neuro  #Neurology  #SupportEpilepsyAwareness  #EpilepsyOutreach 

Take note, the only way to conduct meetings from here on out should be in a #hottub ! Yesterday was 💜#internationalepilepsyday 💜 and @fourvalentines is getting ready for this year’s #26roundstofightepilepsy (✨coming in April✨). Let the planning and hot tubbing begin!!! (This is the very best volunteer perk ever!)
🚨my beloved iPhone 7 fell into said hot tub after our meeting and is still working!!! #miracle #iphonemagic 🌈

Take note, the only way to conduct meetings from here on out should be in a #hottub  ! Yesterday was 💜#internationalepilepsyday  💜 and @fourvalentines is getting ready for this year’s #26roundstofightepilepsy  (✨coming in April✨). Let the planning and hot tubbing begin!!! (This is the very best volunteer perk ever!) 🚨my beloved iPhone 7 fell into said hot tub after our meeting and is still working!!! #miracle  #iphonemagic  🌈

#EPILEPSYDAY #EpilepsySupportPakistan #EpilepsyAssociationOfPakistan #NationalEpilepsyCentreKarachi #epilepsy #epilepsyawareness #NationalEpilepsyCentreKarachi #nationalepilepsycentre #stigma #RemoveStigma #stigmafree #PeopleWithEpilepsy #Support #GiveWingsToFly #FlameofHope #talkepilepsy #AdvocateEpilepsy #FriendsofEpilepsy #InternationalEpilepsyDay # Team NEC #EpilepsyAwarenessRickshawTrain
El alcalde de València, Joan Ribó, ha visitado hoy la mesa informativa instalada por ALCE (Asociación de Epilepsia de la Comunidad Valenciana) en la puerta principal del @ajuntamentvlc con motivo del Día Internacional de la Epilepsia. La concejala de Servicios Sociales, @consolcastillo  y la concejala de Sanidad, @maite_girau han visitado también la mesa, en el marco de esta jornada instituida e impulsada por el  IBE (Buró Internacional de la Epilepsia)  y  por la Liga Internacional Contra la Epilepsia (ILAE).
Desde hace cinco años, el  segundo lunes de febrero, esta convocatoria se realiza  en más de 120 países, impulsada por distintas asociaciones y entidades. El alcalde de #València @joanribovlc ha conversado con las personas responsables de la asociación ALCE (Asociación de Epilepsia de la C. Valenciana ) y ha subrayado la importancia de que las administraciones promuevan y colaboren en  esta labor de información y sensibilización sobre esta manifestación neurológica.
Se trata de una condición que padecen en torno a 65 millones de personas en todo el mundo. En el territorio español se contabilizan alrededor de 400.000 personas, de las que más de 53.000 son residentes en la Comunidad Valenciana. Tal como ha manifestado Ribó, «acabar con  la falta de conocimiento es algo fundamental para mejorar la calidad de vida de las personas afectadas y sus familiares».
La organización de la jornada ha invitado a toda la ciudadanía a acercarse a las mesas informativas, hacerse fotos y subirlas a redes bajo el hastag #epilepsyday, con el objetivo de crear «un trending topic solidario».
El objetivo  de esta campaña, han explicado, es aumentar  la conciencia pública y la comprensión de la epilepsia  para acabar con el estigma y la discriminación que pesan sobre las personas que la padecen y sobre sus familias en todo el mundo.
#EPILEPSYDAY #alceepilepsia
#DiainternacionaldelaEpilepsia  #internationalepilepsyday #internationalepilepsyday2019

El alcalde de València, Joan Ribó, ha visitado hoy la mesa informativa instalada por ALCE (Asociación de Epilepsia de la Comunidad Valenciana) en la puerta principal del @ajuntamentvlc con motivo del Día Internacional de la Epilepsia. La concejala de Servicios Sociales, @consolcastillo y la concejala de Sanidad, @maite_girau han visitado también la mesa, en el marco de esta jornada instituida e impulsada por el  IBE (Buró Internacional de la Epilepsia)  y  por la Liga Internacional Contra la Epilepsia (ILAE). Desde hace cinco años, el  segundo lunes de febrero, esta convocatoria se realiza  en más de 120 países, impulsada por distintas asociaciones y entidades. El alcalde de #València  @joanribovlc ha conversado con las personas responsables de la asociación ALCE (Asociación de Epilepsia de la C. Valenciana ) y ha subrayado la importancia de que las administraciones promuevan y colaboren en  esta labor de información y sensibilización sobre esta manifestación neurológica. Se trata de una condición que padecen en torno a 65 millones de personas en todo el mundo. En el territorio español se contabilizan alrededor de 400.000 personas, de las que más de 53.000 son residentes en la Comunidad Valenciana. Tal como ha manifestado Ribó, «acabar con  la falta de conocimiento es algo fundamental para mejorar la calidad de vida de las personas afectadas y sus familiares». La organización de la jornada ha invitado a toda la ciudadanía a acercarse a las mesas informativas, hacerse fotos y subirlas a redes bajo el hastag #epilepsyday , con el objetivo de crear «un trending topic solidario». El objetivo  de esta campaña, han explicado, es aumentar  la conciencia pública y la comprensión de la epilepsia  para acabar con el estigma y la discriminación que pesan sobre las personas que la padecen y sobre sus familias en todo el mundo. #EPILEPSYDAY  #alceepilepsia  #DiainternacionaldelaEpilepsia  #internationalepilepsyday  #internationalepilepsyday2019 

Este año con motivo de conmemorar el Día Internacional de la #Epilepsia que se celebra el próximo lunes día 11 de febrero.
Os animamos a visitar nuestra mesa informativa y Photocall que podréis encontrar junto a la puerta del Ayuntamiento de Valencia, compartir vuestras fotos en RRSS con los hashtag #EPILEPSYDAY #ALCEEPILEPSIA 
#internationalepilepsyday #internationalepilepsyday2019
HAGAMOS UN MUNDO DE INCLUSIÓN

Este año con motivo de conmemorar el Día Internacional de la #Epilepsia  que se celebra el próximo lunes día 11 de febrero. Os animamos a visitar nuestra mesa informativa y Photocall que podréis encontrar junto a la puerta del Ayuntamiento de Valencia, compartir vuestras fotos en RRSS con los hashtag #EPILEPSYDAY  #ALCEEPILEPSIA  #internationalepilepsyday  #internationalepilepsyday2019  HAGAMOS UN MUNDO DE INCLUSIÓN