Instagram #epilepsyday hashtag medias

It's still the World Epilepsy Awareness month. This is a good one from @who to drive more awareness.

Reposted from @who -  Today is World #EpilepsyDay.
#Epilepsy affects more than 50 million people worldwide, making it one of the most common neurological diseases globally. - #regrann

It's still the World Epilepsy Awareness month. This is a good one from @who to drive more awareness. Reposted from @who - Today is World #EpilepsyDay . #Epilepsy  affects more than 50 million people worldwide, making it one of the most common neurological diseases globally. - #regrann 

این ویدیو در مسابقه روز جهانی صرع جزو برندگان بوده و متعلق به خانم  فرح عباسی مدیر روابط بین الملل انجمن صرع ایران است. 
امیدوارم پیام این ویدیو به خوبی درک بشه چون شرایط بچه های ما در خطره. من تا یک سال آینده داروی ایلیا و خریدم و هر لحظه منتظرم که این دارو دیگه توی مارکت نباشه. حس خوبی نیست اضطراب.

دوستان همراه لطفا در حد توان این ویدیو را به اشتراک بگذارید. با این کارتان کمک بزرگی به درمان صرع خو اهید داشت ممنونم.
 @iranepilepsy تبریک به خانم عباسی
این هم لینک یوتیوب:

https://youtu.be/EJREYIP8n1M?list=PLDtaVe7olIXwRVpMgNYzV0uvixQyEca-k

#iranepilepsyassociation #epilepsyday#endepilepsy #internationalepilepsyday #competition #warrior #stopthewar #peace #liveinthepeace #epilepsypositivity #epilepsyawareness #epilepsywarrior #purpledaymarch26th #purpleday 
#مبارزه_با_صرع #صرع #صرع_و_تشنج #صلح #امنیت #مسابقه_روز_جهانی_صرع #دارو #داروی _صرع

این ویدیو در مسابقه روز جهانی صرع جزو برندگان بوده و متعلق به خانم فرح عباسی مدیر روابط بین الملل انجمن صرع ایران است. امیدوارم پیام این ویدیو به خوبی درک بشه چون شرایط بچه های ما در خطره. من تا یک سال آینده داروی ایلیا و خریدم و هر لحظه منتظرم که این دارو دیگه توی مارکت نباشه. حس خوبی نیست اضطراب. دوستان همراه لطفا در حد توان این ویدیو را به اشتراک بگذارید. با این کارتان کمک بزرگی به درمان صرع خو اهید داشت ممنونم. @iranepilepsy تبریک به خانم عباسی این هم لینک یوتیوب: https://youtu.be/EJREYIP8n1M?list=PLDtaVe7olIXwRVpMgNYzV0uvixQyEca-k #iranepilepsyassociation  #epilepsyday #endepilepsy  #internationalepilepsyday  #competition  #warrior  #stopthewar  #peace  #liveinthepeace  #epilepsypositivity  #epilepsyawareness  #epilepsywarrior  #purpledaymarch26th  #purpleday  #مبارزه_با_صرع  #صرع  #صرع_و_تشنج  #صلح  #امنیت  #مسابقه_روز_جهانی_صرع  #دارو  #داروی  _صرع

Hej hello saturday 😍❤
Kto już ma weekend, a kto dziś pracuje ? 😊
Pisałam pod ostatnim zdjęciem, że 14 lutego to nie tylko Święto Zakochanych... Otóż tego dnia obchodzimy również Międzynarodowy Dzień osób chorych na padaczkę. 
Święty Walenty jest także patronem osób chorych umysłowo oraz nerwowo.
Niektórzy, w związku z dniem zakochanych robią sobie z tego żarty - dodając głupie memy z "życzeniem zdrowia 😂😂". 😠 Nie jest fajnie oglądać takie rzeczy... Ale jeśli ktoś śmieje się z osób chorych / niepełnosprawnych, (nawet mimo tego, że ma to związek z Walentynkami) to sam sobie wystawia tym świadectwo. Warto pamiętać, że choroba (nie ważne jaka) często przychodzi niespodziewanie i może spotkać każdego, czego nikomu nie życzę.
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Wszystkim epileptykom oraz pozostałym, którzy walczą z różnego rodzaju chorobami życzymy dużo dobrego zdrówka, jak najmniej zmartwień i problemów. ❤💪💪
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Miłej soboty! 😊😘 U nas dziś pięknie, słonecznie 🤩🌞 także spacer na dworze obowiązkowo 💪😊
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#mamaisyn #mylove #epilepsy #epilepsyday #internationaldayofepilepsy #walentynki #valentines #valentinesday #matchymatchy #fashion #greyhair #mojewszystko #jestembojestes #macierzynstwo #instamama #instakids #synek #redlook #szarewłosy #niepełnosprawność #matkapolka #miłość #makeup #polskamama #polishgirl #dlugiewlosy #pokojdziecka #follow #instalook

Hej hello saturday 😍❤ Kto już ma weekend, a kto dziś pracuje ? 😊 Pisałam pod ostatnim zdjęciem, że 14 lutego to nie tylko Święto Zakochanych... Otóż tego dnia obchodzimy również Międzynarodowy Dzień osób chorych na padaczkę. Święty Walenty jest także patronem osób chorych umysłowo oraz nerwowo. Niektórzy, w związku z dniem zakochanych robią sobie z tego żarty - dodając głupie memy z "życzeniem zdrowia 😂😂". 😠 Nie jest fajnie oglądać takie rzeczy... Ale jeśli ktoś śmieje się z osób chorych / niepełnosprawnych, (nawet mimo tego, że ma to związek z Walentynkami) to sam sobie wystawia tym świadectwo. Warto pamiętać, że choroba (nie ważne jaka) często przychodzi niespodziewanie i może spotkać każdego, czego nikomu nie życzę. . Wszystkim epileptykom oraz pozostałym, którzy walczą z różnego rodzaju chorobami życzymy dużo dobrego zdrówka, jak najmniej zmartwień i problemów. ❤💪💪 . . Miłej soboty! 😊😘 U nas dziś pięknie, słonecznie 🤩🌞 także spacer na dworze obowiązkowo 💪😊 . . . . #mamaisyn  #mylove  #epilepsy  #epilepsyday  #internationaldayofepilepsy  #walentynki  #valentines  #valentinesday  #matchymatchy  #fashion  #greyhair  #mojewszystko  #jestembojestes  #macierzynstwo  #instamama  #instakids  #synek  #redlook  #szarewłosy  #niepełnosprawność  #matkapolka  #miłość  #makeup  #polskamama  #polishgirl  #dlugiewlosy  #pokojdziecka  #follow  #instalook 

Growing up , I never knew my life would be like it is now. My parents didn’t either. I wasn’t much different to the way I am these days though . I liked nature, my hair was like a lions 🦁 and I loved dungarees with grandma shirts underneath (or was forced to 😆). The doctors don’t know if I was born with epilepsy , or whether it developed with age . I didn’t post the other day on #Epilepsyday because I was bed bound with flu but I’m getting there and I am a bit better today (yay). I started writing stories and keeping quite mature diaries from the age of 7. My amazing step dad joined our family when i was around 9 and he played a huge part in supporting my creativity and my Sister has always been arty so she inspires me too. I was diagnosed with #epilepsy around the age of 10 and began writing ✍️ about my #seizures at the age of 12. Then in 2010 I started writing for a #publishinghouse and won my first #oscaraward in 2011. From then on I wrote about EVERYTHING . #Poems, #songs , stories. Epilepsy was my life and it always will be but I’m so ok with that. I am who I am because of it. I became a #writer for @livingwellwithepilepsy in 2012 and my life has been a huge journey in the #writersworld . From awards to press releases life has been fabulous . It’s been hard , but it’s been fabulous .
I’m Emily , and this is just the start of my journey .

Growing up , I never knew my life would be like it is now. My parents didn’t either. I wasn’t much different to the way I am these days though . I liked nature, my hair was like a lions 🦁 and I loved dungarees with grandma shirts underneath (or was forced to 😆). The doctors don’t know if I was born with epilepsy , or whether it developed with age . I didn’t post the other day on #Epilepsyday  because I was bed bound with flu but I’m getting there and I am a bit better today (yay). I started writing stories and keeping quite mature diaries from the age of 7. My amazing step dad joined our family when i was around 9 and he played a huge part in supporting my creativity and my Sister has always been arty so she inspires me too. I was diagnosed with #epilepsy  around the age of 10 and began writing ✍️ about my #seizures  at the age of 12. Then in 2010 I started writing for a #publishinghouse  and won my first #oscaraward  in 2011. From then on I wrote about EVERYTHING . #Poems , #songs  , stories. Epilepsy was my life and it always will be but I’m so ok with that. I am who I am because of it. I became a #writer  for @livingwellwithepilepsy in 2012 and my life has been a huge journey in the #writersworld  . From awards to press releases life has been fabulous . It’s been hard , but it’s been fabulous . I’m Emily , and this is just the start of my journey .

Cliënten van de #dagbesteding bij SEIN vullen hun cadeauwinkel EigenwijZ elke dag met de mooiste producten. Handgemaakt met veel liefde en onder kundige begeleiding.

Voor #epilepsyday heeft de kaarsenmakerij 10 kleurrijke kaarsen gemaakt om te verloten. Meedoen kan nog tot en met aanstaande zondag via sein.nl/ied (link in bio)

Cliënten van de #dagbesteding  bij SEIN vullen hun cadeauwinkel EigenwijZ elke dag met de mooiste producten. Handgemaakt met veel liefde en onder kundige begeleiding. Voor #epilepsyday  heeft de kaarsenmakerij 10 kleurrijke kaarsen gemaakt om te verloten. Meedoen kan nog tot en met aanstaande zondag via sein.nl/ied (link in bio)

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February 11, 2019, is the World Epilepsy Day. A day dedicated to the awareness of this syndrome which only in Italy involves over 500.000 people, on a total of over 50 million worldwide.
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Created at international level by the International Bureau for #Epilepsy (Ibe) and the International League Against Epilepsy (Ilae), in #Italy it is the Lice (Lega Italiana Contro l'Epilessia) organizing this manifestation, which this year will see many Italian monuments illuminate violet, like for example the Tower of Pisa, the Barcaccia in Piazza di Spagna in Rome or the Maschio Angioino in Naples.
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In order to support the initiatives on the territory, online communication will be characterized by the hashtag #epilessianonmifaipaura (ndt.epilepsy doesn’t frighten me), which goes alongside the international #EpilepsyDay.
In this occasion “Epineeds” was presented, the first national multicentric study on patients’ needs.
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The objective of the investigation is to identify the needs of individuals affected by epilepsy, their level of satisfaction and the doctor-patient relationship.
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We talked of such a delicate topic with doctorPasquale Striano, Doctor in Paediatric Neurology and Muscle Disorders at the ”G. Gaslini” in Genoa.
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📲 Read full article on www.enecta.com/blog
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👉 Link in Bio
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#enecta

👨🏻‍🔬🌱 . February 11, 2019, is the World Epilepsy Day. A day dedicated to the awareness of this syndrome which only in Italy involves over 500.000 people, on a total of over 50 million worldwide. . Created at international level by the International Bureau for #Epilepsy  (Ibe) and the International League Against Epilepsy (Ilae), in #Italy  it is the Lice (Lega Italiana Contro l'Epilessia) organizing this manifestation, which this year will see many Italian monuments illuminate violet, like for example the Tower of Pisa, the Barcaccia in Piazza di Spagna in Rome or the Maschio Angioino in Naples. . In order to support the initiatives on the territory, online communication will be characterized by the hashtag #epilessianonmifaipaura  (ndt.epilepsy doesn’t frighten me), which goes alongside the international #EpilepsyDay . In this occasion “Epineeds” was presented, the first national multicentric study on patients’ needs. . The objective of the investigation is to identify the needs of individuals affected by epilepsy, their level of satisfaction and the doctor-patient relationship. . We talked of such a delicate topic with doctorPasquale Striano, Doctor in Paediatric Neurology and Muscle Disorders at the ”G. Gaslini” in Genoa. . 📲 Read full article on www.enecta.com/blog . 👉 Link in Bio . #enecta 

Incase you didnt know today is World Epilepsy Day the 11th February!! Are you aware of how to react when someone has a seizure??
Remember these 4 Steps...... T - take care to protect the person & clear a space. 
E - ensure you stay with them at all times.
A - allow the seizure to run its course
M - move the person onto their side

check out http://Epilepsy.ie  Your training starts now!! #EpilepsyDay #BeSeizureAware #RememberThereFourSteps #Team

Incase you didnt know today is World Epilepsy Day the 11th February!! Are you aware of how to react when someone has a seizure?? Remember these 4 Steps...... T - take care to protect the person & clear a space. E - ensure you stay with them at all times. A - allow the seizure to run its course M - move the person onto their side check out http://Epilepsy.ie Your training starts now!! #EpilepsyDay  #BeSeizureAware  #RememberThereFourSteps  #Team 

Did you know? I didn't 🤷‍♀️
Learn something new everyday! #allinthistogether
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HAPPY VALENTINES DAY 💜 .
#vday #valentinesday #valentines #stValentine #stvalentinesday #stEpilepsy #didyaknow
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#LetsChangeLives #ChangingLives  #EpilepsyDay #EpilepsyAwareness #Epilepsy #epilepsyFL #Purple #WearPurple #specialneedsparents #specialparents #specialneeds #bbqevents #bbq #Treasurecoast #tcevents #events
Ontem foi dia de eventos na caixinha e pro lanchinho da tarde teve:
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🍊 suquinho de laranja pura fruta geladinho e refrescante;
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🥝 saladinha de frutas da época vindas direto da feirinha orgânica;
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🌯 sandubas naturais no capricho com peito de peru defumado, queijinho muçarela, alface e tomate também orgânicos e um toque de mostarda artesanal com manga e pimenta Habanero;
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🍮 pra sobremesa, uma mini marmitinha com brigadeiro de leite Ninho e brigadeiro de churros 😋
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Todas essas delícias embaladinhas em kits com detalhes em roxo - alusivos ao Dia Internacional da Epilepsia, que se comemorou na última segunda.
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💜
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#epilepsia #epilepsyday #lanchenacaixinha #cozinhaartesanal #cozinhacriativa

Ontem foi dia de eventos na caixinha e pro lanchinho da tarde teve: . 🍊 suquinho de laranja pura fruta geladinho e refrescante; . 🥝 saladinha de frutas da época vindas direto da feirinha orgânica; . 🌯 sandubas naturais no capricho com peito de peru defumado, queijinho muçarela, alface e tomate também orgânicos e um toque de mostarda artesanal com manga e pimenta Habanero; . 🍮 pra sobremesa, uma mini marmitinha com brigadeiro de leite Ninho e brigadeiro de churros 😋 . Todas essas delícias embaladinhas em kits com detalhes em roxo - alusivos ao Dia Internacional da Epilepsia, que se comemorou na última segunda. . 💜 . #epilepsia  #epilepsyday  #lanchenacaixinha  #cozinhaartesanal  #cozinhacriativa 

Media on Epilepsy Awareness Rickshaw Train by National Epilepsy Centre, JPMC. Sponsor: Surge Laboratories. #EPILEPSYDAY #EpilepsySupportPakistan #EpilepsyAssociationOfPakistan #NationalEpilepsyCentreKarachi #epilepsy #epilepsyawareness #NationalEpilepsyCentreKarachi #nationalepilepsycentre #stigma #RemoveStigma #stigmafree #PeopleWithEpilepsy #Support #GiveWingsToFly #FlameofHope #talkepilepsy #AdvocateEpilepsy #FriendsofEpilepsy #InternationalEpilepsyDay #media
#1 Rule: Don't try to restrain someone experiencing a #seizure ! They may experience intense shaking though, so be sure to keep their surroundings clear! http://bit.ly/2TJg9dO [More epilepsy facts on MyEpilepsyTeam.com or link in profile]
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#Epilepsy #EpilepsyWarrior #EpilepsySucks #EpilepsyFighter #EpilepsyPositivity #EpilepsyProblems #EpilepsyMom #EpilepsyDay #EpilepsySupport #EpilepsyStrong #EpilepsyAdvocate #EpilepsyWarriors #EpilepsySociety #EpilepsyAction #EndEpilepsy #EpilepsyAwarenessDay #EpilepsyLife #Seizures #SUDEP #EpilepsyWalk #EpilepsyAwarness #EpilepsyFamily #EpilepsySurgery #EpilepsyFacts #EpilepsyEducation #EpilepsySurvivor #EpilepsySurvivors #EpilepsyAwareness

#1  Rule: Don't try to restrain someone experiencing a #seizure  ! They may experience intense shaking though, so be sure to keep their surroundings clear! http://bit.ly/2TJg9dO [More epilepsy facts on MyEpilepsyTeam.com or link in profile] . . . #Epilepsy  #EpilepsyWarrior  #EpilepsySucks  #EpilepsyFighter  #EpilepsyPositivity  #EpilepsyProblems  #EpilepsyMom  #EpilepsyDay  #EpilepsySupport  #EpilepsyStrong  #EpilepsyAdvocate  #EpilepsyWarriors  #EpilepsySociety  #EpilepsyAction  #EndEpilepsy  #EpilepsyAwarenessDay  #EpilepsyLife  #Seizures  #SUDEP  #EpilepsyWalk  #EpilepsyAwarness  #EpilepsyFamily  #EpilepsySurgery  #EpilepsyFacts  #EpilepsyEducation  #EpilepsySurvivor  #EpilepsySurvivors  #EpilepsyAwareness 

Check out this shelfie shot by @jessicamap showing off DON’T WAKE UP 👀😴
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#Repost @jessicamap with @get_repost
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Thanks to @tlcbooktours and @harpercollinsus #partner for the #giftedcopy .
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Ok guys, last one, I promise 🙈 I couldn't miss #epilepsyday (thought it was tomorrow. I suck)
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Look at this paperback release 😍😍😍😍 this was a 4.5🌟 read for me!
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Don't Wake Up by Liz Lawler
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"Alex Taylor wakes up tied to an operating table.
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The man who stands over her isn't a doctor.
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The offer he makes her is utterly unspeakable.
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But when Alex re-awakens, she's unharmed - and no one believes her horrifying story. Ostracised by her colleagues, her family and her partner, she begins to wonder if she really is losing her mind.
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And then she meets the next victim.
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So compulsive you can't stop reading.
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So chilling you won't stop talking about it.
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A pitch-black and devastatingly original psychological thriller."
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#tlcbooktours #harperpaperbacks #dontwakeup #lizlawler #paperbacks #unitedbookstagram #thrillers #suspense #bookphotos #booktography #bookgram #literature #bookobsessed #fiction

Check out this shelfie shot by @jessicamap showing off DON’T WAKE UP 👀😴 . #Repost  @jessicamap with @get_repost ・・・ Thanks to @tlcbooktours and @harpercollinsus #partner  for the #giftedcopy  . . Ok guys, last one, I promise 🙈 I couldn't miss #epilepsyday  (thought it was tomorrow. I suck) . . Look at this paperback release 😍😍😍😍 this was a 4.5🌟 read for me! . . Don't Wake Up by Liz Lawler . . "Alex Taylor wakes up tied to an operating table. . The man who stands over her isn't a doctor. . The offer he makes her is utterly unspeakable. . But when Alex re-awakens, she's unharmed - and no one believes her horrifying story. Ostracised by her colleagues, her family and her partner, she begins to wonder if she really is losing her mind. . And then she meets the next victim. . So compulsive you can't stop reading. . So chilling you won't stop talking about it. . A pitch-black and devastatingly original psychological thriller." . . #tlcbooktours  #harperpaperbacks  #dontwakeup  #lizlawler  #paperbacks  #unitedbookstagram  #thrillers  #suspense  #bookphotos  #booktography  #bookgram  #literature  #bookobsessed  #fiction 

Con motivo del #Diainternacionaldelaepilepsia les dejamos recomendaciones de primeros auxilios en casos de #convulsiones .
👆Existen muchos tipos de convulsiones, la mayoría duran  pocos minutos. 💡Medidas generales para ayudar a alguien que esté teniendo algún tipo de convulsión:
Acompaña a la persona hasta que la convulsión haya pasado y esté completamente consciente🙇
Después de que pase, ayudala a sentarse en un lugar seguro. 
Contenela y hablale de manera calmada.💆
Fijate si lleva una pulsera con información de emergencia.
Mantenete tranquilo y mantené a quienes esten cerca de igual modo🧘
Ofrece llamar a alguien más que pueda conocer a la persona y serle de ayudarla📱
✋En caso de que la persona tenga una convulsión tonicoclónica generalizada, es posible que grite, se caiga, tiemble o tenga espasmos y no se dé cuenta de lo que sucede a su alrededor.✋En ese caso:🔎recosta con cuidado a la persona en el piso, ponela de costado ya que esto la ayudará a respirar. Saca del área alrededor de la persona los objetos duros o filosos para prevenir lesiones.🔎Apoyale la cabeza sobre algo suave y liso, como una campera doblada.🔎Toma el tiempo que dure la convulsión. Llame a la ambulancia🚑 si la convulsión dura más de 5 minutos.

Lo que NO🚫 tenes que hacer:
🛑No sujetes a la persona ni intentes evitar que se mueva.
🛑No pongas nada en la boca de la persona porque podría lesionarle los dientes o la mandíbula. Una persona con una convulsión no se puede tragar la lengua.
🛑No intentes darle respiración boca a boca. Por lo general, las personas comienzan a respirar de nuevo por su cuenta después de una convulsión.
🛑No le ofrezcas agua ni alimentos a la persona hasta que no esté completamente alerta.
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Fuente ✏️Center for Disease Control and Prevention (CDC).
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#Neurologia #Epilepsia “Diainternacionaldelaepilepsia  #PRIMEROSAUXILIOS #convulsiones #amigospurpura #epilepsyday

Con motivo del #Diainternacionaldelaepilepsia  les dejamos recomendaciones de primeros auxilios en casos de #convulsiones  . 👆Existen muchos tipos de convulsiones, la mayoría duran  pocos minutos. 💡Medidas generales para ayudar a alguien que esté teniendo algún tipo de convulsión: Acompaña a la persona hasta que la convulsión haya pasado y esté completamente consciente🙇 Después de que pase, ayudala a sentarse en un lugar seguro. Contenela y hablale de manera calmada.💆 Fijate si lleva una pulsera con información de emergencia. Mantenete tranquilo y mantené a quienes esten cerca de igual modo🧘 Ofrece llamar a alguien más que pueda conocer a la persona y serle de ayudarla📱 ✋En caso de que la persona tenga una convulsión tonicoclónica generalizada, es posible que grite, se caiga, tiemble o tenga espasmos y no se dé cuenta de lo que sucede a su alrededor.✋En ese caso:🔎recosta con cuidado a la persona en el piso, ponela de costado ya que esto la ayudará a respirar. Saca del área alrededor de la persona los objetos duros o filosos para prevenir lesiones.🔎Apoyale la cabeza sobre algo suave y liso, como una campera doblada.🔎Toma el tiempo que dure la convulsión. Llame a la ambulancia🚑 si la convulsión dura más de 5 minutos. Lo que NO🚫 tenes que hacer: 🛑No sujetes a la persona ni intentes evitar que se mueva. 🛑No pongas nada en la boca de la persona porque podría lesionarle los dientes o la mandíbula. Una persona con una convulsión no se puede tragar la lengua. 🛑No intentes darle respiración boca a boca. Por lo general, las personas comienzan a respirar de nuevo por su cuenta después de una convulsión. 🛑No le ofrezcas agua ni alimentos a la persona hasta que no esté completamente alerta. . Fuente ✏️Center for Disease Control and Prevention (CDC). . #Neurologia  #Epilepsia  “Diainternacionaldelaepilepsia  #PRIMEROSAUXILIOS  #convulsiones  #amigospurpura  #epilepsyday 

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I happened to schedule to post this photo of Cody for International Epilepsy Day on February 11th, but obviously I didn’t managed to have it posted.🙊 Though I really wanted to take my part on that day, I just couldn’t do it. It takes so much courage for me to be able to share my thoughts about this topic.⠀
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Cody @pinkcuddlefish is a fighter since day one, 👊he never feel any different from other kids because his condition doesn’t define him. He’s a happy and healthy kid.⠀
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Though I’m so grateful that he’s not having seizures anymore and that he’s grown into a healthy and happy cheeky boy, there’s still some time when I feel like all those feelings that I’m feeling when my 5 days old newborn Cody was having seizures,🤱and we have no clue what’s going on since all his lab tests came out clean until he was diagnosed with focal epilepsy at 1 month old.🔬 I felt it when he was in my arms, and watched my newborn having seizures, it was so heartbreaking.💔💔💔 It crushed me then, and still crushes me whenever that old feeling comes back to me💔.⠀
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All those feelings are still coming back sometimes, like it’s a flashback and makes me feel sad and cry hard.😭 There were times when I also find it hard to breathe, I literally cannot breathe cos my air passage feels like it’s closing the more I cry and the more I think of that event.⠀
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My husband used to tell me to move on and look at Cody, that he’s grown into a healthy and happy little boy. My defense, I think I already moved on that💪.⠀
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I just don’t know what is it, but whenever that heartbreaking feeling and the memories of Cody having seizures comes back, it makes me really sad.😔 It makes me feel down and makes me want to do just nothing for a day. Now you know why I couldn’t post it as scheduled the other day.⠀
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With 65 million people who have epilepsy, I hope my voice find its way to reach other moms and build a community where we can share our thoughts and support each other. It’s better together! 🙌. ⠀
@epilepsyfoundationaus⠀
@epilepsy.talk⠀
@endepilepsy⠀
@globalepilepsyexchange⠀
@epilepsycentre⠀
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#epilepsyawareness #purpleday

⠀ I happened to schedule to post this photo of Cody for International Epilepsy Day on February 11th, but obviously I didn’t managed to have it posted.🙊 Though I really wanted to take my part on that day, I just couldn’t do it. It takes so much courage for me to be able to share my thoughts about this topic.⠀ ⠀ Cody @pinkcuddlefish is a fighter since day one, 👊he never feel any different from other kids because his condition doesn’t define him. He’s a happy and healthy kid.⠀ ⠀ Though I’m so grateful that he’s not having seizures anymore and that he’s grown into a healthy and happy cheeky boy, there’s still some time when I feel like all those feelings that I’m feeling when my 5 days old newborn Cody was having seizures,🤱and we have no clue what’s going on since all his lab tests came out clean until he was diagnosed with focal epilepsy at 1 month old.🔬 I felt it when he was in my arms, and watched my newborn having seizures, it was so heartbreaking.💔💔💔 It crushed me then, and still crushes me whenever that old feeling comes back to me💔.⠀ ⠀ All those feelings are still coming back sometimes, like it’s a flashback and makes me feel sad and cry hard.😭 There were times when I also find it hard to breathe, I literally cannot breathe cos my air passage feels like it’s closing the more I cry and the more I think of that event.⠀ ⠀ My husband used to tell me to move on and look at Cody, that he’s grown into a healthy and happy little boy. My defense, I think I already moved on that💪.⠀ ⠀ I just don’t know what is it, but whenever that heartbreaking feeling and the memories of Cody having seizures comes back, it makes me really sad.😔 It makes me feel down and makes me want to do just nothing for a day. Now you know why I couldn’t post it as scheduled the other day.⠀ ⠀ With 65 million people who have epilepsy, I hope my voice find its way to reach other moms and build a community where we can share our thoughts and support each other. It’s better together! 🙌. ⠀ @epilepsyfoundationaus⠀ @epilepsy.talk⠀ @endepilepsy⠀ @globalepilepsyexchange⠀ @epilepsycentre⠀ ⠀ ⠀ ⠀ ⠀ #epilepsyawareness  #purpleday 

_برگزاری همایش روز جهانی صرع بهانه ایست تا بگوییم "با صرع تنها نمانید"
پس تلاش می کنیم همه در کنار هم یک صدا فریاد بزنیم
 برای صرع به پا خیزیم
🦋🙏🏻💟🎗
#ورود_عموم_آزاد
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#internationalepilepsyday #internationalepilepsyday2019 #internationalepilepsyday2018 #برای_صرع_بپاخیزیم 
#انجمن_خیریه_صرع_اصفهان #صرع #epilepsy  #hope ##همایش #روزجهانی_صرع #برای_صرع_بپاخیزیم  #epilepsyday #international_epilepsy_day
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_برگزاری همایش روز جهانی صرع بهانه ایست تا بگوییم "با صرع تنها نمانید" پس تلاش می کنیم همه در کنار هم یک صدا فریاد بزنیم برای صرع به پا خیزیم 🦋🙏🏻💟🎗 #ورود_عموم_آزاد  __________________________________________ #internationalepilepsyday  #internationalepilepsyday2019  #internationalepilepsyday2018  #برای_صرع_بپاخیزیم  #انجمن_خیریه_صرع_اصفهان  #صرع  #epilepsy  #hope  ##همایش  #روزجهانی_صرع  #برای_صرع_بپاخیزیم  #epilepsyday  #international_epilepsy_day  ______________________

#purpleforkaia ON THE RADIO special thanks to Redding Radio for you sponsorship!! Mark your calendar, register (link in profile), and come have fun!! #seizethesundial #crosswithkaia #purpleforkaia #epilepsyawareness #epilepsyawarenessday #seizetheday #seizureawareness #march26 #wearpurpleday #epilepsyday #epilepsywarrior #seizures #seize #purple #seizethemoment #sundialbridge #reddingca #turtlebay #localschools #youthwithavoice #confidence #voiceyourself #standstrong #beaware #instagood #instagram #takeover #walkitout #love
Two days after my sister received a letter from the government, denying her Medicaid, she has a seizure. ...
I was just about to fall asleep, when I hear a crash from her bedroom. I holler out, hoping she'll respond with an, "I'm okay, just dropped something," but instead, I get silence. ...
I rush down the hall, throw open her door, and it won't open all the way. I look inside the crack, and she's unconscious on the floor. When she fell, her laundry basket fell and wedged itself in front of the door... it's broken now. ...
I gently shake her, call her name, but she doesn't respond. I'm pretty sure my heart stopped for the 30 seconds that felt like hours. She finally jerks awake, but it took her a bit before she became coherent and aware. ...
This is a part of my Twinster's life... being okay one second, and unconscious on the floor the next. She has been fired from a job she loved, she has been bullied, she has been misunderstood, and at times, she has felt defeated. And yet, none of that qualifies her to receive help for the medical necessities it takes to minimize these horrible and frightening episodes. She's not asking for the world; she's only asking to receive help in affording her countless doctor's appointments and medication it takes to keep her safe. How is a person's well-being not worth it to our government. ...
I know my family has asked for many prayers that they get my sister lined out, but I'm asking again. I'm asking for that, but also that when my family appeals the decision made on behalf of my Twinster, that they find a way to better understand her condition. She deserves the treatment it takes to make her feel safe, without worrying about the costs. Everyone deserves that. ...
💜💜💜
#EpilepsyAwareness #EpilepsyDay #MySisterIsAWarrior #Twinster #Strength #Love #Support #FindACure

Two days after my sister received a letter from the government, denying her Medicaid, she has a seizure. ... I was just about to fall asleep, when I hear a crash from her bedroom. I holler out, hoping she'll respond with an, "I'm okay, just dropped something," but instead, I get silence. ... I rush down the hall, throw open her door, and it won't open all the way. I look inside the crack, and she's unconscious on the floor. When she fell, her laundry basket fell and wedged itself in front of the door... it's broken now. ... I gently shake her, call her name, but she doesn't respond. I'm pretty sure my heart stopped for the 30 seconds that felt like hours. She finally jerks awake, but it took her a bit before she became coherent and aware. ... This is a part of my Twinster's life... being okay one second, and unconscious on the floor the next. She has been fired from a job she loved, she has been bullied, she has been misunderstood, and at times, she has felt defeated. And yet, none of that qualifies her to receive help for the medical necessities it takes to minimize these horrible and frightening episodes. She's not asking for the world; she's only asking to receive help in affording her countless doctor's appointments and medication it takes to keep her safe. How is a person's well-being not worth it to our government. ... I know my family has asked for many prayers that they get my sister lined out, but I'm asking again. I'm asking for that, but also that when my family appeals the decision made on behalf of my Twinster, that they find a way to better understand her condition. She deserves the treatment it takes to make her feel safe, without worrying about the costs. Everyone deserves that. ... 💜💜💜 #EpilepsyAwareness  #EpilepsyDay  #MySisterIsAWarrior  #Twinster  #Strength  #Love  #Support  #FindACure 

Monday was epilepsy awareness day.  If you listened to the first episode podcast you know the importance of Valentine’s Day last year. 
EEGs will be a regular part of Masons life. Even though he’s been seizure free since last April, that doesn’t mean they’re gone forever. With #STXBP1, some kiddos start to regress in their teenage years because of hormones and seizures come back. We have a plan in place in case he has another seizure. Last week we lost a 15 year old boy STXBP1’er to a seizure. I am heartbroken for his family and the community. 
Unfortunately seizures are pretty common, however the genetics disorder Mason has is not. Regardless, seizures suck. Do you know someone who has had a seizure? #seizuressuck #epilepsy #epilepsyday #epilepsyawareness #infantilespasms #infantilespasmawareness #stxbp1 #stxbp1strong #eeg

Monday was epilepsy awareness day. If you listened to the first episode podcast you know the importance of Valentine’s Day last year. EEGs will be a regular part of Masons life. Even though he’s been seizure free since last April, that doesn’t mean they’re gone forever. With #STXBP1 , some kiddos start to regress in their teenage years because of hormones and seizures come back. We have a plan in place in case he has another seizure. Last week we lost a 15 year old boy STXBP1’er to a seizure. I am heartbroken for his family and the community. Unfortunately seizures are pretty common, however the genetics disorder Mason has is not. Regardless, seizures suck. Do you know someone who has had a seizure? #seizuressuck  #epilepsy  #epilepsyday  #epilepsyawareness  #infantilespasms  #infantilespasmawareness  #stxbp1  #stxbp1strong  #eeg 

It's #epilepsyday and we've carefully put together some basic things you need to know about epilepsy and pregnancy.
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FOLIC ACID: Folic acid helps prevent neural tube defects, serious abnormalities of the brain and spinal cord in the developing fetus. Because some seizure drugs affect the way the body uses folic acid, your health care provider will recommend a high-dose folic acid supplement — ideally starting three months before conception.
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PRENATAL VISITS: During pregnancy, you'll see your health care provider often. Your weight and blood pressure will be checked at every visit, and you might need frequent blood tests to monitor your medication level.
If you're taking anti-seizure medications, your health care provider might recommend oral vitamin K supplements during the last month of pregnancy to help prevent bleeding problems in the baby after birth.
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POSSIBILITY OF A SEIZURE IN PREGNANCY
Seizures can be dangerous, but many mothers who have seizures during pregnancy deliver healthy babies. Report the seizure promptly to your health care provider. He or she might adjust your medication. If you have a seizure in the last few months of your pregnancy, your health care provider will monitor your baby at the hospital or clinic.
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HOW TO MAKE SURE YOUR BABY IS OK
Your health care provider will monitor your baby's health throughout the pregnancy. You might have frequent ultrasounds to track your baby's development. Your health care provider might recommend other prenatal tests, as well.
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Epilepsy during pregnancy raises special concerns. While most women who have epilepsy deliver healthy babies, others might need special care during pregnancy.
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@who @unicef @unicef_Nigeria @gatesfoundation @melindafrenchgates @savethechildren
#epilepsyawareness #motherandbaby #newborn #health #thrivingup #perinatalcare #antenatalcare #jpblessedtues1 #health #wellbeing #growth #survival #thrivingup

It's #epilepsyday  and we've carefully put together some basic things you need to know about epilepsy and pregnancy. . FOLIC ACID: Folic acid helps prevent neural tube defects, serious abnormalities of the brain and spinal cord in the developing fetus. Because some seizure drugs affect the way the body uses folic acid, your health care provider will recommend a high-dose folic acid supplement — ideally starting three months before conception. . PRENATAL VISITS: During pregnancy, you'll see your health care provider often. Your weight and blood pressure will be checked at every visit, and you might need frequent blood tests to monitor your medication level. If you're taking anti-seizure medications, your health care provider might recommend oral vitamin K supplements during the last month of pregnancy to help prevent bleeding problems in the baby after birth. . POSSIBILITY OF A SEIZURE IN PREGNANCY Seizures can be dangerous, but many mothers who have seizures during pregnancy deliver healthy babies. Report the seizure promptly to your health care provider. He or she might adjust your medication. If you have a seizure in the last few months of your pregnancy, your health care provider will monitor your baby at the hospital or clinic. . HOW TO MAKE SURE YOUR BABY IS OK Your health care provider will monitor your baby's health throughout the pregnancy. You might have frequent ultrasounds to track your baby's development. Your health care provider might recommend other prenatal tests, as well. . Epilepsy during pregnancy raises special concerns. While most women who have epilepsy deliver healthy babies, others might need special care during pregnancy. . . @who @unicef @unicef_Nigeria @gatesfoundation @melindafrenchgates @savethechildren #epilepsyawareness  #motherandbaby  #newborn  #health  #thrivingup  #perinatalcare  #antenatalcare  #jpblessedtues1  #health  #wellbeing  #growth  #survival  #thrivingup 

Today is 🌍World’s International Epilepsy Day! And I couldn’t be happier with feedbacks I’m receiving constantly. We need to speak out loud and spread information to end prejudice. ✨🙏🏻 Hoje é o 🌍Dia Mundial da Epilepsia! E eu não poderia estar mais feliz com o resultado da minha iniciativa, estou recebendo feedbacks incríveis o tempo todo. Nós temos que espalhar informação e acabar com o preconceito. 🔅🔆www.iepilepsy.com🔆🔅 #epilepsy #epilepsyawareness #epilepsyday #epilepsywarrior #epilepsia #health #healthylifestyle #iepilepsy

Today is 🌍World’s International Epilepsy Day! And I couldn’t be happier with feedbacks I’m receiving constantly. We need to speak out loud and spread information to end prejudice. ✨🙏🏻 Hoje é o 🌍Dia Mundial da Epilepsia! E eu não poderia estar mais feliz com o resultado da minha iniciativa, estou recebendo feedbacks incríveis o tempo todo. Nós temos que espalhar informação e acabar com o preconceito. 🔅🔆www.iepilepsy.com🔆🔅 #epilepsy  #epilepsyawareness  #epilepsyday  #epilepsywarrior  #epilepsia  #health  #healthylifestyle  #iepilepsy 

MARIHUANA NË EPILEPSI?

Gjatë vitit që e lëmë pas, në treg doli ilaçi i parë me përmbajtje të kanabidiolit (CBD) me qëllim të trajtimit të epilepsisë. Bëhet fjalë për dy lloje të rënda të epilepsisë në moshën fëmijërore – sindromën Lennox-Gastaut dhe sindromën Dravet. Këto janë dy sindroma të foshnjërisë dhe fëmijërisë së hershme që karakterizohen me retardim mendor dhe zhvillimor, si edhe sulme epileptike rezistente në barna. Pra, përkundër përdorimit të 3 apo 4 barnave antiepileptike njëkohësisht, kontrollimi i sulmeve mund të jetë shumë i vështirë. Prandaj, prindërit e këtyre fëmijëve kishin filluar para shumë vitesh t’u japin fëmijëve të tyre marihuanë dhe kishin vërejtur efektin pozitiv në rrallimin e sulmeve epileptike. Pas studimeve të bëra në kushte të kontrolluara klinike, ilaçi i quajtur EPIDIOLEX (me përmbajtjen kanabidiolit) ka marrë leje nga autoritetet rregullatore që të përdoret për dy llojet e lartpërmendura të epilepsisë, te fëmijët mbi moshën 2-vjeçe.

Kjo nuk nënkupton që ky bar apo marihuana ka efekt mbi llojet e tjera të epilepsive. Po ashtu, nisja e përdorimit të EPIDIOLEXIT nuk nënkupton se barnat e tjera antiepileptike duhet të ndërpriten. Studimi i kryer në 516 fëmijë me sindromat Lennox-Gastaut dhe Dravet ka dëshmuar që shtimi i kanabidiolit barnave të tjerë të zakonshëm, ka treguar efekt në pakësimin e sulmeve epileptike.

Përgjumja, oreksi i humbur, lodhja, cilësia e dobët e gjumit, skuqja e lëkurës dhe barkqitja janë raportuar të jenë efektet më të shpeshta anësore. Zgjerimi i përdorimit të kanabidiolit në lloje të tjera të epilepsisë do të jetë i mundur pas studimeve të mirëfillta klinike. Fushat e tjera neurologjike ku marihuana tërheq interes janë: vjellja, shtimi i apetitit, dhembja neuropatike dhe spasticiteti në sklerozën multiple, kujdesi paliativ në kancere, sëmundja e Parkinsonit dhe çrregullimi i ankthit.

#marijuana #cannabidiol #epilepsy #epilepsyday #lennoxgastautsyndrome #dravetsyndrome #epilepsia #kanabis #marihuana #treatment #neurologjia #neurology 
@spitaliamerikanprishtine

MARIHUANA NË EPILEPSI? Gjatë vitit që e lëmë pas, në treg doli ilaçi i parë me përmbajtje të kanabidiolit (CBD) me qëllim të trajtimit të epilepsisë. Bëhet fjalë për dy lloje të rënda të epilepsisë në moshën fëmijërore – sindromën Lennox-Gastaut dhe sindromën Dravet. Këto janë dy sindroma të foshnjërisë dhe fëmijërisë së hershme që karakterizohen me retardim mendor dhe zhvillimor, si edhe sulme epileptike rezistente në barna. Pra, përkundër përdorimit të 3 apo 4 barnave antiepileptike njëkohësisht, kontrollimi i sulmeve mund të jetë shumë i vështirë. Prandaj, prindërit e këtyre fëmijëve kishin filluar para shumë vitesh t’u japin fëmijëve të tyre marihuanë dhe kishin vërejtur efektin pozitiv në rrallimin e sulmeve epileptike. Pas studimeve të bëra në kushte të kontrolluara klinike, ilaçi i quajtur EPIDIOLEX (me përmbajtjen kanabidiolit) ka marrë leje nga autoritetet rregullatore që të përdoret për dy llojet e lartpërmendura të epilepsisë, te fëmijët mbi moshën 2-vjeçe. Kjo nuk nënkupton që ky bar apo marihuana ka efekt mbi llojet e tjera të epilepsive. Po ashtu, nisja e përdorimit të EPIDIOLEXIT nuk nënkupton se barnat e tjera antiepileptike duhet të ndërpriten. Studimi i kryer në 516 fëmijë me sindromat Lennox-Gastaut dhe Dravet ka dëshmuar që shtimi i kanabidiolit barnave të tjerë të zakonshëm, ka treguar efekt në pakësimin e sulmeve epileptike. Përgjumja, oreksi i humbur, lodhja, cilësia e dobët e gjumit, skuqja e lëkurës dhe barkqitja janë raportuar të jenë efektet më të shpeshta anësore. Zgjerimi i përdorimit të kanabidiolit në lloje të tjera të epilepsisë do të jetë i mundur pas studimeve të mirëfillta klinike. Fushat e tjera neurologjike ku marihuana tërheq interes janë: vjellja, shtimi i apetitit, dhembja neuropatike dhe spasticiteti në sklerozën multiple, kujdesi paliativ në kancere, sëmundja e Parkinsonit dhe çrregullimi i ankthit. #marijuana  #cannabidiol  #epilepsy  #epilepsyday  #lennoxgastautsyndrome  #dravetsyndrome  #epilepsia  #kanabis  #marihuana  #treatment  #neurologjia  #neurology  @spitaliamerikanprishtine

Epilepsy Day is very special to us here at Angels Of Epilepsy! We do interact with many survivors and advocates worldwide. So let’s continue to spread the awareness and outreach for epilepsy! And definitely spread the love and support for the many lives affected! 💜 Visit https://www.epilepsy.com/make-difference/public-awareness/international-epilepsy-day

#EpilepsyDay #InternationalEpilepsyDay #EpilepsyEquity #EPILEPSYLIVESMATTER #Epilepsy #Seizures #BrainDisorder #Neuro #Neurology #SupportEpilepsyAwareness #EpilepsyOutreach

Epilepsy Day is very special to us here at Angels Of Epilepsy! We do interact with many survivors and advocates worldwide. So let’s continue to spread the awareness and outreach for epilepsy! And definitely spread the love and support for the many lives affected! 💜 Visit https://www.epilepsy.com/make-difference/public-awareness/international-epilepsy-day #EpilepsyDay  #InternationalEpilepsyDay  #EpilepsyEquity  #EPILEPSYLIVESMATTER  #Epilepsy  #Seizures  #BrainDisorder  #Neuro  #Neurology  #SupportEpilepsyAwareness  #EpilepsyOutreach 

I know im late, yesterday i was busy. 
BUT i havent forgot it! 
So cuz yesterday was #epilepsyday that is today’s topic!
Epilepsy is the fourth most common neurological disorder and affects people of all ages.

Epilepsy means the same thing as "seizure disorders." Epilepsy is characterized by unpredictable seizures and can cause other health problems.

Epilepsy is a spectrum condition with a wide range of seizure types and control varying from person-to-person.

Public misunderstandings of epilepsy cause challenges that are often worse than the seizures.

Soooo please be nice whit every one whit epilepsy because its hard to live whit epilepsy! 
I suggest meditation to every epileptic (and non-epileptic) person!
I help in so much thing!
#epilepsy #love #humanity

I know im late, yesterday i was busy. BUT i havent forgot it! So cuz yesterday was #epilepsyday  that is today’s topic! Epilepsy is the fourth most common neurological disorder and affects people of all ages. Epilepsy means the same thing as "seizure disorders." Epilepsy is characterized by unpredictable seizures and can cause other health problems. Epilepsy is a spectrum condition with a wide range of seizure types and control varying from person-to-person. Public misunderstandings of epilepsy cause challenges that are often worse than the seizures. Soooo please be nice whit every one whit epilepsy because its hard to live whit epilepsy! I suggest meditation to every epileptic (and non-epileptic) person! I help in so much thing! #epilepsy  #love  #humanity 

#EPILEPSYDAY #EpilepsySupportPakistan #EpilepsyAssociationOfPakistan #NationalEpilepsyCentreKarachi #epilepsy #epilepsyawareness #NationalEpilepsyCentreKarachi #nationalepilepsycentre #stigma #RemoveStigma #stigmafree #PeopleWithEpilepsy #Support #GiveWingsToFly #FlameofHope #talkepilepsy #AdvocateEpilepsy #FriendsofEpilepsy #InternationalEpilepsyDay # Team NEC #EpilepsyAwarenessRickshawTrain
جشن روز جهانی صرع 
یک روز به یاد ماندنی ۲۹ بهمن ۱۳۹۶
امسال هم به همراه شما یک روز خاطره انگیز و به یادماندنی خواهیم ساخت.💟🎗 ________________________
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سپاس بیکران از همراهی: 
جناب آقای محمد امامی  @akaskhaneh.studio 
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استاد نازنین شریف توکلی (گروه هنگام)
 @sharif_tavakoli  @farzaadkabiri جناب آقای فرزاد کبیری عزیز نوازنده تار
 جناب آقای داود قهرودی عزیز نوازنده تنبک @davood_ghohroodi_ 
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مجری عزیز و توانمند جناب آقای مهدی سرتاج
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گروه حرفه ای تشریفات تک @tak_party_planner
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برنامه ریزی خانم مهندس ندا سرتاج ‏@neda_sartaj 
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شرکت دارویی رها 
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دوچرخه سواری اسپادانا
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هیئت دارت استان
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طراحی چهره ی کودکان @shaqayeqpolad 
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پزشکان همیشه همراه انجمن
و تمامی عزیزانی که یار و همراه بودند
___________________________________________
#internationalepilepsyday #internationalepilepsyday2019 #internationalepilepsyday2018 #برای_صرع_بپاخیزیم 
#انجمن_خیریه_صرع_اصفهان #صرع #epilepsy  #hope ##همایش #روزجهانی_صرع #برای_صرع_بپاخیزیم  #epilepsyday #international_epilepsy_day
______________________

جشن روز جهانی صرع یک روز به یاد ماندنی ۲۹ بهمن ۱۳۹۶ امسال هم به همراه شما یک روز خاطره انگیز و به یادماندنی خواهیم ساخت.💟🎗 ________________________ ________________________ سپاس بیکران از همراهی: جناب آقای محمد امامی @akaskhaneh.studio _______________ استاد نازنین شریف توکلی (گروه هنگام) @sharif_tavakoli @farzaadkabiri جناب آقای فرزاد کبیری عزیز نوازنده تار جناب آقای داود قهرودی عزیز نوازنده تنبک @davood_ghohroodi_ _______________ مجری عزیز و توانمند جناب آقای مهدی سرتاج _______________ گروه حرفه ای تشریفات تک @tak_party_planner _______________ برنامه ریزی خانم مهندس ندا سرتاج ‏@neda_sartaj _______________ شرکت دارویی رها _______________ دوچرخه سواری اسپادانا _______________ هیئت دارت استان _______________ طراحی چهره ی کودکان @shaqayeqpolad _______________ پزشکان همیشه همراه انجمن و تمامی عزیزانی که یار و همراه بودند ___________________________________________ #internationalepilepsyday  #internationalepilepsyday2019  #internationalepilepsyday2018  #برای_صرع_بپاخیزیم  #انجمن_خیریه_صرع_اصفهان  #صرع  #epilepsy  #hope  ##همایش  #روزجهانی_صرع  #برای_صرع_بپاخیزیم  #epilepsyday  #international_epilepsy_day  ______________________

جشن روز جهانی صرع 
یک روز به یاد ماندنی ۲۹ بهمن ۱۳۹۶
امسال هم به همراه شما یک روز خاطره انگیز و به یادماندنی خواهیم ساخت.💟🎗 ________________________
________________________
سپاس بیکران از همراهی: 
جناب آقای محمد امامی  @akaskhaneh.studio 
_______________
استاد نازنین شریف توکلی (گروه هنگام)
 @sharif_tavakoli  @farzaadkabiri جناب آقای فرزاد کبیری عزیز نوازنده تار
 جناب آقای داود قهرودی عزیز نوازنده تنبک @davood_ghohroodi_ 
_______________
مجری عزیز و توانمند جناب آقای مهدی سرتاج
_______________
گروه حرفه ای تشریفات تک @tak_party_planner
_______________
برنامه ریزی خانم مهندس ندا سرتاج ‏@neda_sartaj 
_______________
شرکت دارویی رها 
_______________
دوچرخه سواری اسپادانا
_______________
هیئت دارت استان
_______________
طراحی چهره ی کودکان @shaqayeqpolad 
_______________
پزشکان همیشه همراه انجمن
و تمامی عزیزانی که یار و همراه بودند
___________________________________________
#internationalepilepsyday #internationalepilepsyday2019 #internationalepilepsyday2018 #برای_صرع_بپاخیزیم 
#انجمن_خیریه_صرع_اصفهان #صرع #epilepsy  #hope ##همایش #روزجهانی_صرع #برای_صرع_بپاخیزیم  #epilepsyday #international_epilepsy_day
______________________

جشن روز جهانی صرع یک روز به یاد ماندنی ۲۹ بهمن ۱۳۹۶ امسال هم به همراه شما یک روز خاطره انگیز و به یادماندنی خواهیم ساخت.💟🎗 ________________________ ________________________ سپاس بیکران از همراهی: جناب آقای محمد امامی @akaskhaneh.studio _______________ استاد نازنین شریف توکلی (گروه هنگام) @sharif_tavakoli @farzaadkabiri جناب آقای فرزاد کبیری عزیز نوازنده تار جناب آقای داود قهرودی عزیز نوازنده تنبک @davood_ghohroodi_ _______________ مجری عزیز و توانمند جناب آقای مهدی سرتاج _______________ گروه حرفه ای تشریفات تک @tak_party_planner _______________ برنامه ریزی خانم مهندس ندا سرتاج ‏@neda_sartaj _______________ شرکت دارویی رها _______________ دوچرخه سواری اسپادانا _______________ هیئت دارت استان _______________ طراحی چهره ی کودکان @shaqayeqpolad _______________ پزشکان همیشه همراه انجمن و تمامی عزیزانی که یار و همراه بودند ___________________________________________ #internationalepilepsyday  #internationalepilepsyday2019  #internationalepilepsyday2018  #برای_صرع_بپاخیزیم  #انجمن_خیریه_صرع_اصفهان  #صرع  #epilepsy  #hope  ##همایش  #روزجهانی_صرع  #برای_صرع_بپاخیزیم  #epilepsyday  #international_epilepsy_day  ______________________

Vi vill rikta ett stort, stort tack till alla er som på något vis bidragit till den här insamlingen. Att vi skulle nå över 100.000 kronor kunde vi aldrig drömma om. Vi var överväldigade och rörda till tårar när vi idag fick räcka över checken på 107.553 kr till Hjärnfonden. Tillsammans har vi gjort skillnad! Nu fortsätter vi det viktiga arbetet med att sätta epilepsi i fokus. Det är så mycket mer än bara en KrAMP.  Vi hoppas att ni är med oss fortsättningsvis också! Tack än en gång! 💜

#alltomepilepsi #meränbaraenkramp #enkramp #anfall #medicinering #epilepsi #hjärnfonden #epilepsiforskning #insamling #awereness #lilabandet #hjärnan #epilepsivård #funkaolika  #förståelse  #funktionsnedsättning #levamedepilepsi 
#livetsomepileptiker  #evigkamp 
#hoppomframtid #världsepilepsidagen #epilepsyday

Vi vill rikta ett stort, stort tack till alla er som på något vis bidragit till den här insamlingen. Att vi skulle nå över 100.000 kronor kunde vi aldrig drömma om. Vi var överväldigade och rörda till tårar när vi idag fick räcka över checken på 107.553 kr till Hjärnfonden. Tillsammans har vi gjort skillnad! Nu fortsätter vi det viktiga arbetet med att sätta epilepsi i fokus. Det är så mycket mer än bara en KrAMP. Vi hoppas att ni är med oss fortsättningsvis också! Tack än en gång! 💜 #alltomepilepsi  #meränbaraenkramp  #enkramp  #anfall  #medicinering  #epilepsi  #hjärnfonden  #epilepsiforskning  #insamling  #awereness  #lilabandet  #hjärnan  #epilepsivård  #funkaolika  #förståelse  #funktionsnedsättning  #levamedepilepsi  #livetsomepileptiker  #evigkamp  #hoppomframtid  #världsepilepsidagen  #epilepsyday 

En nuestra familia, Fundación Conexión IPS, apoyamos el día internacional de la epilepsia.Hoy Martes 12 de febrero acércate a nuestra sede principal en Armenia Quindío (Cra. 14 #18N-40) e infórmate acerca de que debes hacer si presencias una crisis epiléptica. Combatamos la epilepsia con conocimiento. Neuroconexión Clínica de Neurología MediSomniumClínica Especializada Odontología Ortoconexion #EpilepsyDay

En nuestra familia, Fundación Conexión IPS, apoyamos el día internacional de la epilepsia.Hoy Martes 12 de febrero acércate a nuestra sede principal en Armenia Quindío (Cra. 14 #18N -40) e infórmate acerca de que debes hacer si presencias una crisis epiléptica. Combatamos la epilepsia con conocimiento. Neuroconexión Clínica de Neurología MediSomniumClínica Especializada Odontología Ortoconexion #EpilepsyDay 

جشن روز جهانی صرع 
یک روز به یاد ماندنی ۲۹ بهمن ۱۳۹۶
امسال هم به همراه شما یک روز خاطره انگیز و به یادماندنی خواهیم ساخت.💟🎗 ________________________
________________________
سپاس بیکران از همراهی: 
جناب آقای محمد امامی  @akaskhaneh.studio 
_______________
استاد نازنین شریف توکلی (گروه هنگام)
 @sharif_tavakoli  @farzaadkabiri جناب آقای فرزاد کبیری عزیز نوازنده تار
 جناب آقای داود قهرودی عزیز نوازنده تنبک @davood_ghohroodi_ 
_______________
مجری عزیز و توانمند جناب آقای مهدی سرتاج
_______________
گروه حرفه ای تشریفات تک @tak_party_planner
_______________
برنامه ریزی خانم مهندس ندا سرتاج ‏@neda_sartaj 
_______________
شرکت دارویی رها 
_______________
دوچرخه سواری اسپادانا
_______________
هیئت دارت استان
_______________
طراحی چهره ی کودکان @shaqayeqpolad 
_______________
پزشکان همیشه همراه انجمن
و تمامی عزیزانی که یار و همراه بودند
___________________________________________
#internationalepilepsyday #internationalepilepsyday2019 #internationalepilepsyday2018 #برای_صرع_بپاخیزیم 
#انجمن_خیریه_صرع_اصفهان #صرع #epilepsy  #hope ##همایش #روزجهانی_صرع #برای_صرع_بپاخیزیم  #epilepsyday #international_epilepsy_day
______________________

جشن روز جهانی صرع یک روز به یاد ماندنی ۲۹ بهمن ۱۳۹۶ امسال هم به همراه شما یک روز خاطره انگیز و به یادماندنی خواهیم ساخت.💟🎗 ________________________ ________________________ سپاس بیکران از همراهی: جناب آقای محمد امامی @akaskhaneh.studio _______________ استاد نازنین شریف توکلی (گروه هنگام) @sharif_tavakoli @farzaadkabiri جناب آقای فرزاد کبیری عزیز نوازنده تار جناب آقای داود قهرودی عزیز نوازنده تنبک @davood_ghohroodi_ _______________ مجری عزیز و توانمند جناب آقای مهدی سرتاج _______________ گروه حرفه ای تشریفات تک @tak_party_planner _______________ برنامه ریزی خانم مهندس ندا سرتاج ‏@neda_sartaj _______________ شرکت دارویی رها _______________ دوچرخه سواری اسپادانا _______________ هیئت دارت استان _______________ طراحی چهره ی کودکان @shaqayeqpolad _______________ پزشکان همیشه همراه انجمن و تمامی عزیزانی که یار و همراه بودند ___________________________________________ #internationalepilepsyday  #internationalepilepsyday2019  #internationalepilepsyday2018  #برای_صرع_بپاخیزیم  #انجمن_خیریه_صرع_اصفهان  #صرع  #epilepsy  #hope  ##همایش  #روزجهانی_صرع  #برای_صرع_بپاخیزیم  #epilepsyday  #international_epilepsy_day  ______________________

Morgen ist der „Internationale Tag der Epilepsie“. In der Notfallrettung begegnet uns diese Erkrankung häufig dann, wenn starke, unwillkürliche Zuckungen am ganzen Körper und ein Bewusstseinsverlust im Spiel sind. In der Regel werden wir von Angehörigen des Patienten oder Passanten alarmiert, die bei einem spontan aufgetretenen Anfall dabei sind.

Mit folgenden Maßnahmen könnt ihr der betroffenen Person helfen:
• setzt über die 112 einen Notruf ab!
• haltet die betroffene Person nicht fest, sondern entfernt scharfkantige oder harte
Gegenstände (Stühle, Tische, etc.), an welchen sie sich verletzen könnte;
• sichert mögliche Absturzkanten (z.B. am Bahnsteig oder an einer Treppe);
• schützt die Person vor herannahenden Fahrzeugen;
• wenn der Krampfanfall vorüber ist (in der Regel nach wenigen Minuten), fallen viele
Betroffene in einen harmlosen tiefen Schlaf. Da ihr nicht sicher sein könnt, dass alle Schutzreflexe wie z.B. Schlucken, Würgen oder Husten funktionieren, dreht die Person in die Stabile Seitenlage, um ein Verschlucken der Zunge zu verhindern;
- ist der Betroffene nach dem Krampfereignis ansprechbar, kann sie dennoch verwirrt sein. Bitte bleibt vor Ort und betreut die sie. Gleichzeitig ist eure Beobachtung für den Behandlungsverlauf wichtig, da die Dauer des Krampfanfalls sowie die Art der Zuckungen eventuell auf möglichen Ursachen hinweisen könnten;

#AicherAmbulanzUnion #GemeinsamFürMehrLeben #epilepsyday #epilepsy #Rettungsdienst #notfallrettung

Morgen ist der „Internationale Tag der Epilepsie“. In der Notfallrettung begegnet uns diese Erkrankung häufig dann, wenn starke, unwillkürliche Zuckungen am ganzen Körper und ein Bewusstseinsverlust im Spiel sind. In der Regel werden wir von Angehörigen des Patienten oder Passanten alarmiert, die bei einem spontan aufgetretenen Anfall dabei sind. Mit folgenden Maßnahmen könnt ihr der betroffenen Person helfen: • setzt über die 112 einen Notruf ab! • haltet die betroffene Person nicht fest, sondern entfernt scharfkantige oder harte Gegenstände (Stühle, Tische, etc.), an welchen sie sich verletzen könnte; • sichert mögliche Absturzkanten (z.B. am Bahnsteig oder an einer Treppe); • schützt die Person vor herannahenden Fahrzeugen; • wenn der Krampfanfall vorüber ist (in der Regel nach wenigen Minuten), fallen viele Betroffene in einen harmlosen tiefen Schlaf. Da ihr nicht sicher sein könnt, dass alle Schutzreflexe wie z.B. Schlucken, Würgen oder Husten funktionieren, dreht die Person in die Stabile Seitenlage, um ein Verschlucken der Zunge zu verhindern; - ist der Betroffene nach dem Krampfereignis ansprechbar, kann sie dennoch verwirrt sein. Bitte bleibt vor Ort und betreut die sie. Gleichzeitig ist eure Beobachtung für den Behandlungsverlauf wichtig, da die Dauer des Krampfanfalls sowie die Art der Zuckungen eventuell auf möglichen Ursachen hinweisen könnten; #AicherAmbulanzUnion  #GemeinsamFu ̈rMehrLeben #epilepsyday  #epilepsy  #Rettungsdienst  #notfallrettung 

Continuem compartilhando suas histórias para prosseguirmos com a comemoração do Dia Internacional da Epilepsia!
Obrigada Sandra por seu relato 💜. Tenho epilepsia desde os 30 anos, hoje tenho 60 anos. Muitas foram as batalhas diárias procurando por ajuda. Tomei muitos tipos de medicamentos. Há 12 anos sofri um acidente grave: refogando arroz, passei por uma crise convulsiva e queimei minha mão. Fiquei internada por 30 dias. Passei pelo centro cirúrgico 10 vezes perdendo a primeira falange de quatro dedos. Nunca desisti de acreditar que em algum lugar encontraria ajuda. Foi então que minha neuro disse que eu deveria passar por consulta na UNIFESP HOSPITAL SÃO PAULO. Comecei então, a passar por consulta e após estudos, chegou-se a conclusão que a única alternativa que tinha era a cirurgia. Não pestanejei. Aceitei. Hoje, 6 anos pós cirurgia não tenho mais crise e não tomo nenhum medicamento. Por favor, não deixe de lutar nunca. #epilepsyday #ligabrasileiradeepilepsia #internationalepilepsyday #associaçãobrasileiradeepilepsia #juntossomosfortes #epilepsiabrasil

Continuem compartilhando suas histórias para prosseguirmos com a comemoração do Dia Internacional da Epilepsia! Obrigada Sandra por seu relato 💜. Tenho epilepsia desde os 30 anos, hoje tenho 60 anos. Muitas foram as batalhas diárias procurando por ajuda. Tomei muitos tipos de medicamentos. Há 12 anos sofri um acidente grave: refogando arroz, passei por uma crise convulsiva e queimei minha mão. Fiquei internada por 30 dias. Passei pelo centro cirúrgico 10 vezes perdendo a primeira falange de quatro dedos. Nunca desisti de acreditar que em algum lugar encontraria ajuda. Foi então que minha neuro disse que eu deveria passar por consulta na UNIFESP HOSPITAL SÃO PAULO. Comecei então, a passar por consulta e após estudos, chegou-se a conclusão que a única alternativa que tinha era a cirurgia. Não pestanejei. Aceitei. Hoje, 6 anos pós cirurgia não tenho mais crise e não tomo nenhum medicamento. Por favor, não deixe de lutar nunca. #epilepsyday  #ligabrasileiradeepilepsia  #internationalepilepsyday  #associaçãobrasileiradeepilepsia  #juntossomosfortes  #epilepsiabrasil 

#GiornataMondialeDellEpilessia - 🧬sapete cos’è l’epilessia? 🧬È un insieme di disturbi del sistema nervoso centrale che hanno in comune la ripetuta comparsa di episodi transitori di fenomeni anormali di origine motoria (#convulsioni), sensoriale, vegetativa o psichica, formicolii e dolori addominali. Si calcola che il 3% della popolazione sia affetta da questa malattia. Nell’ antichità si riteneva che chi ne era affetto fosse più vicino alle divinità. Menti illuminate, come quella di #Ippocrate, affermavano invece che “l’epilessia avrebbe cessato di essere considerata di origine divina il giorno in cui fosse capitata”. Se ne avete voglia, consultate i siti web 🌐www.fondazionelice.it e 🌐www.lice.it per maggiori informazioni sulla giornata mondiale dell’epilessia e sulla malattia in generale. ❗️Informatevi sempre.❗️

#GiornataMondialeDellEpilessia  - 🧬sapete cos’è l’epilessia? 🧬È un insieme di disturbi del sistema nervoso centrale che hanno in comune la ripetuta comparsa di episodi transitori di fenomeni anormali di origine motoria (#convulsioni ), sensoriale, vegetativa o psichica, formicolii e dolori addominali. Si calcola che il 3% della popolazione sia affetta da questa malattia. Nell’ antichità si riteneva che chi ne era affetto fosse più vicino alle divinità. Menti illuminate, come quella di #Ippocrate , affermavano invece che “l’epilessia avrebbe cessato di essere considerata di origine divina il giorno in cui fosse capitata”. Se ne avete voglia, consultate i siti web 🌐www.fondazionelice.it e 🌐www.lice.it per maggiori informazioni sulla giornata mondiale dell’epilessia e sulla malattia in generale. ❗️Informatevi sempre.❗️

Hari Epilepsi Antarabangsa
.
Epilepsi boleh terjadi pada sesiapa yang mempunyai otak. Menurut Persatuan Kesihatan Dunia, epilepsy ialah masalah otak yang serius di seluruh dunia tidak mengira  umur, bangsa, taraf sosial dan negara.
Ketidak fahaman masyarakat tentang epilepsi boleh menyebabkan cabaran yang besar terhadap diri dan keluarga penghidap. Ianya dianggap taboo dan tidak diperkatakan secara meluas sehingga boleh menyebabkan depresi.
.
Satu dari 10 orang akan menghidap sawan dan satu dari 26 orang akan di diagnos sebagai epilepsi.
.
Marilah sama-sama kita raikan ketidak sempurnaan orang lain kerana kita juga punya kekurangan.
.
Selamat Hari Epilepsi Antarabangsa.

#NarinarEpilepsyAwareness
#flutherapy #epilepsyday #essentialoil #terapiselsema #likeforlikes #aromatherapy #babyselsema #narinarsquad #agentnarinar #comelpipimerah #travelkit #narinarselayang #narinarkepong #narinarselangor #narinargombak #narinarKL #sleeptherapy #tummytherapy #babyselsema #babycute #babydemam #anakmama #anakibu #anakmommy #ronellakl #younglivingkl

Hari Epilepsi Antarabangsa . Epilepsi boleh terjadi pada sesiapa yang mempunyai otak. Menurut Persatuan Kesihatan Dunia, epilepsy ialah masalah otak yang serius di seluruh dunia tidak mengira umur, bangsa, taraf sosial dan negara. Ketidak fahaman masyarakat tentang epilepsi boleh menyebabkan cabaran yang besar terhadap diri dan keluarga penghidap. Ianya dianggap taboo dan tidak diperkatakan secara meluas sehingga boleh menyebabkan depresi. . Satu dari 10 orang akan menghidap sawan dan satu dari 26 orang akan di diagnos sebagai epilepsi. . Marilah sama-sama kita raikan ketidak sempurnaan orang lain kerana kita juga punya kekurangan. . Selamat Hari Epilepsi Antarabangsa. #NarinarEpilepsyAwareness  #flutherapy  #epilepsyday  #essentialoil  #terapiselsema  #likeforlikes  #aromatherapy  #babyselsema  #narinarsquad  #agentnarinar  #comelpipimerah  #travelkit  #narinarselayang  #narinarkepong  #narinarselangor  #narinargombak  #narinarKL  #sleeptherapy  #tummytherapy  #babyselsema  #babycute  #babydemam  #anakmama  #anakibu  #anakmommy  #ronellakl  #younglivingkl 

Hari Epilepsi Antarabangsa
.
Epilepsi boleh terjadi pada sesiapa yang mempunyai otak. Menurut Persatuan Kesihatan Dunia, epilepsy ialah masalah otak yang serius di seluruh dunia tidak mengira  umur, bangsa, taraf sosial dan negara.
Ketidak fahaman masyarakat tentang epilepsi boleh menyebabkan cabaran yang besar terhadap diri dan keluarga penghidap. Ianya dianggap taboo dan tidak diperkatakan secara meluas sehingga boleh menyebabkan depresi.
.
Satu dari 10 orang akan menghidap sawan dan satu dari 26 orang akan di diagnos sebagai epilepsi.
.
Marilah sama-sama kita raikan ketidak sempurnaan orang lain kerana kita juga punya kekurangan.
.
Selamat Hari Epilepsi Antarabangsa.

#NarinarEpilepsyAwareness
#flutherapy #epilepsyday #essentialoil #terapiselsema #likeforlikes #aromatherapy #babyselsema #narinarsquad #agentnarinar #comelpipimerah #travelkit #narinarselayang #narinarkepong #narinarselangor #narinargombak #narinarKL #sleeptherapy #tummytherapy #babyselsema #babycute #babydemam #anakmama #anakibu #anakmommy #ronellakl #younglivingkl

Hari Epilepsi Antarabangsa . Epilepsi boleh terjadi pada sesiapa yang mempunyai otak. Menurut Persatuan Kesihatan Dunia, epilepsy ialah masalah otak yang serius di seluruh dunia tidak mengira umur, bangsa, taraf sosial dan negara. Ketidak fahaman masyarakat tentang epilepsi boleh menyebabkan cabaran yang besar terhadap diri dan keluarga penghidap. Ianya dianggap taboo dan tidak diperkatakan secara meluas sehingga boleh menyebabkan depresi. . Satu dari 10 orang akan menghidap sawan dan satu dari 26 orang akan di diagnos sebagai epilepsi. . Marilah sama-sama kita raikan ketidak sempurnaan orang lain kerana kita juga punya kekurangan. . Selamat Hari Epilepsi Antarabangsa. #NarinarEpilepsyAwareness  #flutherapy  #epilepsyday  #essentialoil  #terapiselsema  #likeforlikes  #aromatherapy  #babyselsema  #narinarsquad  #agentnarinar  #comelpipimerah  #travelkit  #narinarselayang  #narinarkepong  #narinarselangor  #narinargombak  #narinarKL  #sleeptherapy  #tummytherapy  #babyselsema  #babycute  #babydemam  #anakmama  #anakibu  #anakmommy  #ronellakl  #younglivingkl 

Hari Epilepsi Antarabangsa
.
Epilepsi boleh terjadi pada sesiapa yang mempunyai otak. Menurut Persatuan Kesihatan Dunia, epilepsy ialah masalah otak yang serius di seluruh dunia tidak mengira  umur, bangsa, taraf sosial dan negara.
Ketidak fahaman masyarakat tentang epilepsi boleh menyebabkan cabaran yang besar terhadap diri dan keluarga penghidap. Ianya dianggap taboo dan tidak diperkatakan secara meluas sehingga boleh menyebabkan depresi.
.
Satu dari 10 orang akan menghidap sawan dan satu dari 26 orang akan di diagnos sebagai epilepsi.
.
Marilah sama-sama kita raikan ketidak sempurnaan orang lain kerana kita juga punya kekurangan.
.
Selamat Hari Epilepsi Antarabangsa.

#NarinarEpilepsyAwareness
#flutherapy #epilepsyday #essentialoil #terapiselsema #likeforlikes #aromatherapy #babyselsema #narinarsquad #agentnarinar #comelpipimerah #travelkit #narinarselayang #narinarkepong #narinarselangor #narinargombak #narinarKL #sleeptherapy #tummytherapy #babyselsema #babycute #babydemam #anakmama #anakibu #anakmommy #ronellakl #younglivingkl

Hari Epilepsi Antarabangsa . Epilepsi boleh terjadi pada sesiapa yang mempunyai otak. Menurut Persatuan Kesihatan Dunia, epilepsy ialah masalah otak yang serius di seluruh dunia tidak mengira umur, bangsa, taraf sosial dan negara. Ketidak fahaman masyarakat tentang epilepsi boleh menyebabkan cabaran yang besar terhadap diri dan keluarga penghidap. Ianya dianggap taboo dan tidak diperkatakan secara meluas sehingga boleh menyebabkan depresi. . Satu dari 10 orang akan menghidap sawan dan satu dari 26 orang akan di diagnos sebagai epilepsi. . Marilah sama-sama kita raikan ketidak sempurnaan orang lain kerana kita juga punya kekurangan. . Selamat Hari Epilepsi Antarabangsa. #NarinarEpilepsyAwareness  #flutherapy  #epilepsyday  #essentialoil  #terapiselsema  #likeforlikes  #aromatherapy  #babyselsema  #narinarsquad  #agentnarinar  #comelpipimerah  #travelkit  #narinarselayang  #narinarkepong  #narinarselangor  #narinargombak  #narinarKL  #sleeptherapy  #tummytherapy  #babyselsema  #babycute  #babydemam  #anakmama  #anakibu  #anakmommy  #ronellakl  #younglivingkl 

Obrigada Graciana por compartilhar sua história de superação conosco!
Ontem,  dia 11/02 foi o Dia Internacional da Epilepsia. 
Só quem tem a Epilepsia sabe o que é ter que esconder sua doença para não sofrer preconceito. Já perdi emprego por isso, já me chamaram de "essa epilepticazinha"...
Gente é só uma doença, NÃO escolhemos ter epilepsia.

E por experiência digo, o preconceito nasce da ignorância.
MULTIPLIQUE seus "anjos da guarda". Fale sobre sua doença, e como as pessoas podem te ajudar. Funciona!!!
(OBRIGADA aos meus! Todos que já me socorreram nas minhas crises, sou eternamente grata 💜) E se depois disso, ainda houver preconceito, larga de mão a pessoa, não vale tê-la em seu convívio. MAS você terá feito sua parte: distribuiu o CONHECIMENTO!!! Também nunca me privei de fazer NADA nessa vida em função da doença, com exceção de andar de montanha russa, pq eu tenho medo e uso a doença como desculpa 😜 (tem suas vantagens). Andei de asa delta, bump jump, escalei morros, acampo, sou chefe escoteira, vou em parques de diversões (menos a tal da montanha russa), tenho 2 filhas, uma delas puxou demais a mãe e resolveu ter epilepsia também 😜

A vida é muito curta e linda, precisamos aproveitar TODAS as oportunidades e criar algumas 😉💜💜 #epilepsyday #associaçãobrasileiradeepilepsia #ligabrasileiradeepilepsia  #epilepsiabrasil #internationalepilepsyday

Obrigada Graciana por compartilhar sua história de superação conosco! Ontem, dia 11/02 foi o Dia Internacional da Epilepsia. Só quem tem a Epilepsia sabe o que é ter que esconder sua doença para não sofrer preconceito. Já perdi emprego por isso, já me chamaram de "essa epilepticazinha"... Gente é só uma doença, NÃO escolhemos ter epilepsia. E por experiência digo, o preconceito nasce da ignorância. MULTIPLIQUE seus "anjos da guarda". Fale sobre sua doença, e como as pessoas podem te ajudar. Funciona!!! (OBRIGADA aos meus! Todos que já me socorreram nas minhas crises, sou eternamente grata 💜) E se depois disso, ainda houver preconceito, larga de mão a pessoa, não vale tê-la em seu convívio. MAS você terá feito sua parte: distribuiu o CONHECIMENTO!!! Também nunca me privei de fazer NADA nessa vida em função da doença, com exceção de andar de montanha russa, pq eu tenho medo e uso a doença como desculpa 😜 (tem suas vantagens). Andei de asa delta, bump jump, escalei morros, acampo, sou chefe escoteira, vou em parques de diversões (menos a tal da montanha russa), tenho 2 filhas, uma delas puxou demais a mãe e resolveu ter epilepsia também 😜 A vida é muito curta e linda, precisamos aproveitar TODAS as oportunidades e criar algumas 😉💜💜 #epilepsyday  #associaçãobrasileiradeepilepsia  #ligabrasileiradeepilepsia  #epilepsiabrasil  #internationalepilepsyday 

Reposted from @superherojiby -  As we we  celebrate  this  International Epilepsy Day its a day to shine a light on the challenges faced by the 65 million people living with epilepsy around the world and the millions more who care for them. It also reminds us that there is still a vital need to raise money for research, advocacy, care and support, and education.
 your  support  is  critical  to ensure we can continue to make advances in treatment and care, protect the rights of people with epilepsy, and promote awareness around the world.

#epilepsyday #epilepsyadvocacy #epilepsywarrior #endseizure #endstigma #mentalhealthawareness 
#jibythesuperhero 
@epilepsyiowa
@epilepsyfdn 
@epilepsyawarenessday 
@endepilepsy 
@epilepsyfoundationwa
@intepilepsyday - #regrann

Reposted from @superherojiby - As we we celebrate this International Epilepsy Day its a day to shine a light on the challenges faced by the 65 million people living with epilepsy around the world and the millions more who care for them. It also reminds us that there is still a vital need to raise money for research, advocacy, care and support, and education. your support is critical  to ensure we can continue to make advances in treatment and care, protect the rights of people with epilepsy, and promote awareness around the world. #epilepsyday  #epilepsyadvocacy  #epilepsywarrior  #endseizure  #endstigma  #mentalhealthawareness  #jibythesuperhero  @epilepsyiowa @epilepsyfdn @epilepsyawarenessday @endepilepsy @epilepsyfoundationwa @intepilepsyday - #regrann 

As we we  celebrate  this  International Epilepsy Day its a day to shine a light on the challenges faced by the 65 million people living with epilepsy around the world and the millions more who care for them. It also reminds us that there is still a vital need to raise money for research, advocacy, care and support, and education.
 your  support  is  critical  to ensure we can continue to make advances in treatment and care, protect the rights of people with epilepsy, and promote awareness around the world.

#epilepsyday #epilepsyadvocacy #epilepsywarrior #endseizure #endstigma #mentalhealthawareness 
#jibythesuperhero 
@epilepsyiowa
@epilepsyfdn 
@epilepsyawarenessday 
@endepilepsy 
@epilepsyfoundationwa
@intepilepsyday

As we we celebrate this International Epilepsy Day its a day to shine a light on the challenges faced by the 65 million people living with epilepsy around the world and the millions more who care for them. It also reminds us that there is still a vital need to raise money for research, advocacy, care and support, and education. your support is critical  to ensure we can continue to make advances in treatment and care, protect the rights of people with epilepsy, and promote awareness around the world. #epilepsyday  #epilepsyadvocacy  #epilepsywarrior  #endseizure  #endstigma  #mentalhealthawareness  #jibythesuperhero  @epilepsyiowa @epilepsyfdn @epilepsyawarenessday @endepilepsy @epilepsyfoundationwa @intepilepsyday

It’s International Epilepsy Day … a day to shine a light on the challenges faced by the 65 million people living with epilepsy around the world and the millions more who care for them. It also reminds us that there is still a vital need to raise money for research, advocacy, care and support, and education

#endepilepsy #epilepsyday  #fightstigma

@intepilepsyday 
@myepilepsysupport 
@epilespy_awareness2004_2013_18

It’s International Epilepsy Day … a day to shine a light on the challenges faced by the 65 million people living with epilepsy around the world and the millions more who care for them. It also reminds us that there is still a vital need to raise money for research, advocacy, care and support, and education #endepilepsy  #epilepsyday  #fightstigma  @intepilepsyday @myepilepsysupport @epilespy_awareness2004_2013_18

1 crore people in India suffer from Epilepsy-  a central nervous system (neurological) disorder in which brain activity becomes abnormal, causing seizures or periods of unusual behavior, sensations, and sometimes loss of awareness. 
Look around, talk to people and learn if you have someone suffering from severe epilepsy around you. If yes, then tell them how SIA can help them TODAY. #InternationalEpilepsyDay #MedicalRehabilitation #LongTermAcuteCare
#sia #healthcare #eldercare #epilepsyday #disorder #hyderabad #India

1 crore people in India suffer from Epilepsy- a central nervous system (neurological) disorder in which brain activity becomes abnormal, causing seizures or periods of unusual behavior, sensations, and sometimes loss of awareness. Look around, talk to people and learn if you have someone suffering from severe epilepsy around you. If yes, then tell them how SIA can help them TODAY. #InternationalEpilepsyDay  #MedicalRehabilitation  #LongTermAcuteCare  #sia  #healthcare  #eldercare  #epilepsyday  #disorder  #hyderabad  #India 

Ringraziamo il Sindaco di #venafro Alfredo Ricci, l’Assessore Dario Ottaviano, L’ Amministrazione Comunale e tutti i cittadini di Venafro che hanno voluto sostenere un’idea comune: essere d’esempio per abbattere i pregiudizi che bersagliano le persone con epilessia ancora nel 2019. Ciò non può essere possibile e possiamo combattere solo insieme e credendo fermamente in ciò che facciamo. #epilessianonmifaipaura #internationalepilepsyday #giornatamondialeepilessia #liceogiannone #liceogiannonecaserta #caserta #epilepsyday #epilessia #epilepsyawarenessday #epilessianonmifaipaura  #epilessianonmifaipaura #fondazionelice

Ringraziamo il Sindaco di #venafro  Alfredo Ricci, l’Assessore Dario Ottaviano, L’ Amministrazione Comunale e tutti i cittadini di Venafro che hanno voluto sostenere un’idea comune: essere d’esempio per abbattere i pregiudizi che bersagliano le persone con epilessia ancora nel 2019. Ciò non può essere possibile e possiamo combattere solo insieme e credendo fermamente in ciò che facciamo. #epilessianonmifaipaura  #internationalepilepsyday  #giornatamondialeepilessia  #liceogiannone  #liceogiannonecaserta  #caserta  #epilepsyday  #epilessia  #epilepsyawarenessday  #epilessianonmifaipaura  #epilessianonmifaipaura  #fondazionelice 

Ho una crisi, entro in crisi e non per la crisi. Gli sguardi di chi non sa mi creano imbarazzo, la paura di alcuni mi fa sentire in colpa. Io ho l’Epilessia, ma non sono la mia “malattia”. E voi dovete saperlo: “Chi soffre di epilessia non è un diverso”. EPILESSIA NON MI FAI PAURA. Intervista a G. Di Gennaro, Responsabile Centro Epilessia Neuromed.  #epilessianonmifaipaura #internationalepilepsyday #giornatamondialeepilessia #liceogiannone #liceogiannonecaserta #caserta #epilepsyday #epilessia #epilepsyawarenessday #epilessianonmifaipaura  #epilessianonmifaipaura Fondazione Epilessia LICE

Ho una crisi, entro in crisi e non per la crisi. Gli sguardi di chi non sa mi creano imbarazzo, la paura di alcuni mi fa sentire in colpa. Io ho l’Epilessia, ma non sono la mia “malattia”. E voi dovete saperlo: “Chi soffre di epilessia non è un diverso”. EPILESSIA NON MI FAI PAURA. Intervista a G. Di Gennaro, Responsabile Centro Epilessia Neuromed. #epilessianonmifaipaura  #internationalepilepsyday  #giornatamondialeepilessia  #liceogiannone  #liceogiannonecaserta  #caserta  #epilepsyday  #epilessia  #epilepsyawarenessday  #epilessianonmifaipaura  #epilessianonmifaipaura  Fondazione Epilessia LICE